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CongratulationsCongratulationsCongratulationsCongratulations
2009 Outstanding2009 Outstanding2009 Outstanding2009 Outstanding
DSP Recipients:DSP Recipients:DSP Recipients:DSP Recipients:
Craig JohnsonCraig JohnsonCraig JohnsonCraig Johnson
Rebecca WhitmanRebecca WhitmanRebecca WhitmanRebecca Whitman
Bridget SiljanderBridget SiljanderBridget SiljanderBridget Siljander
other focus groups to
ensure that consumers
receive the information
and resources necessary
to understand these
changes and to make
informed choices about
their services.
One of the changes that
isn’t getting communi-
cated very well, is that
when consumers are re-when consumers are re-when consumers are re-when consumers are re-
assessed prior to theirassessed prior to theirassessed prior to theirassessed prior to their
actual service renewalactual service renewalactual service renewalactual service renewal
date, those consumersdate, those consumersdate, those consumersdate, those consumers
will loose any bankedwill loose any bankedwill loose any bankedwill loose any banked
hours that they had,hours that they had,hours that they had,hours that they had, as
the service update or re-
The Department of Hu-
man Services (DHS) be-
gan mailing out notices of
the upcoming service up-
dates and reassessments
that will take place begin-
ning in January 2010 thru
July 2010. This news
was neither a trick, nor a
treat for the thousands of
Minnesotan's who receive
PCA services. Due to aDue to aDue to aDue to a
drastic change in thedrastic change in thedrastic change in thedrastic change in the
Home Care ratings sys-Home Care ratings sys-Home Care ratings sys-Home Care ratings sys-
tem, many individual’stem, many individual’stem, many individual’stem, many individual’s
are going to see on aver-are going to see on aver-are going to see on aver-are going to see on aver-
age, a reduction of fifteenage, a reduction of fifteenage, a reduction of fifteenage, a reduction of fifteen
minutes per dayminutes per dayminutes per dayminutes per day–––– doesn’t
sound like much, but
when you consider this is
a loss of nearly 2.5 hours
a week, 10 hours a
month and 130 hours a
year, you can see that this
savings measure for the
State is causing some
very real problems for the
consumers who use their
PCA services to remain
independent in their
home, communities and
even at work .
Staff in the PAS program
have been working with
the Consortium for Citi-
zens with Disabilities
(www.mnccd.org) and
D H S A N N O U N C E S E L I G I B I L I T Y C H A N G E S , B E G I N S S E R V I C E
R E A S S E S S M E N T S F O R J A N U A R Y 2 0 1 0
S T A N D A R D I Z E D T R A I N I N G O N I T S W A Y F O R 2 0 1 0
Starting January 01, 2010 any new
hire that is working with a PCA
agency will be expected to go
through a new standardized training
program developed by DHS. New
hire’s will have seven days from the
date of hire to complete and suc-
cessfully pass this training. The
good news is, once the DSP com-
pletes the training, they are good for
a year, if they wish to work for multi-
ple agencies. DSPs that are al-
ready employed by an agency will
have one year from January 01,
2010 to take the test and pass.
DHS is considering allowing for a
competency test-out option for
staff that have been working suc-
cessfully in the field for many
years.
Currently the recommended ore
competencies are under review
with a focus group that PAS
staff Brigette Menger-Anderson
and Sarah Murphy attend and
have input in. MCIL will revise
their current training materials
to include the standardized
core materials, and will make
the new training a prerequisite
before processing any new
hires after January 01, 2010.
More information to come.
PERSONALASSISTANT
SERVICES
N E W S F O R T H E D I S A B I L I T Y C O M M U N I T Y
F A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O N
T H E B U L L E T I N
I N S I D E T H I S I S S U E :
R E A S S E S S M E N T ,
C O N T .
2
D S P A D V O C A T E
O F T H E Y E A R : A N
I N T E R V I E W
2 -
3
F L U G U I D E L I N E S
A N D R E S O U R C E S
4
M C I L C A L E N D A R
O F E V E N T S
5
“ Y O U N E E D T O
H E A R M E ”
H O T L I N E
6
assessment will create
a revision in their cur-
rent service agreement,
and as a result, con-
sumers can’t use the
hours that were banked
and agencies can’t bill
for those banked hours
either; the service
agreement revision will
not include those
banked hours in the
new allocation.
PAS staff are going
through DHS sponsored
training to better under-
stand these changes.
We will then schedule
time to meet with con-
sumers to discuss these
changes and to assist
consumers with prepar-
ing for a possible reduc-
tion in their services.
PAS staff will also havePAS staff will also havePAS staff will also havePAS staff will also have
access to the knowl-access to the knowl-access to the knowl-access to the knowl-
edge and resources ofedge and resources ofedge and resources ofedge and resources of
the Disability Linkagethe Disability Linkagethe Disability Linkagethe Disability Linkage
Line staff and MCIL ad-Line staff and MCIL ad-Line staff and MCIL ad-Line staff and MCIL ad-
vocates.vocates.vocates.vocates. While PAS
staff cannot assist con-
sumers with the appeal
process, should this
become a desired op-
tion, the PAS staff canthe PAS staff canthe PAS staff canthe PAS staff can
get consumers con-get consumers con-get consumers con-get consumers con-
nected to staff at MCILnected to staff at MCILnected to staff at MCILnected to staff at MCIL
at no cost to the con-at no cost to the con-at no cost to the con-at no cost to the con-
sumer.sumer.sumer.sumer.
The PAS team has also
recently revised the
Consumer Care Plan
and have begun to
schedule appointments
with consumers to de-
velop a new Consumer
Support Plan. We are
confident that this new
Plan will capture with
more detail, the level of
supports that the con-
sumer needs to meet
their goals of independ-
ent living. The new sup-
port plan includes a
section on consumer-
directed standard oper-
ating procedures, or
“house rules.” It is our
hope that having guide-
lines and rules about
expectations, breaks,
smoking, visitors, etc.,
will limit the need for
agency involvement and
intervention. The plan
also includes a section
where all new hires will
sign-off on the Support
Plan, review a state-
ment of acknowledge-
ment about PCA billing
and Medical Assistance
fraud and their respon-
sibility to keep their
Bridget Siljander has been a direct sup-
port professional (DSP) since completing high
school. In college Bridget graduated Suma Cum
Laude, which is impressive in itself, but consider-
ing she was also a single mother to her daughter,
Imani who has cerebral palsy, you might already
think of her as super woman, before you learn
another thing about her!
She is currently involved with DSPAM as the
Board President; College of Direct Support as a
curriculum author; Direct Care Alliance as the
Voices Institute Coordinator; she is self-
employed as a private home health aide (10
years for the same consumer), has worked as
DSP with MCIL and is a DSP representative
for the Alliance for Full Participation.
The following page is excerpts from an inter-
view between the PAS Program Manager,
Brigette Menger-Anderson and Bridget Sil-
jander.
R E A S S E S S M E N T C O N T .
Page 2T H E B U L L E T I N
A N I N T E R V I E W W I T H D S P A D V O C A T E O F T H E Y E A R
"
We must remember
that one determined
person can make a
significant difference,
and that a small
group of determined
people can change the
course of history.”
Sonia Johnson
contact information cur-
rent with the consumer
and agency at all times,
and a place to docu-
ment their contact infor-
mation. This will also
assist consumers with
tracking dates of hire,
and having contact in-
formation readily avail-
able.
We encourage consum-
ers to start scheduling
appointments with
Sarah Murphy, the PAS
Consumer Supports Co-
ordinator and Qualified
Professional, starting in
December.
Sarah can be reachedSarah can be reachedSarah can be reachedSarah can be reached
at 651.603.2039 orat 651.603.2039 orat 651.603.2039 orat 651.603.2039 or
sarahm@mcilsarahm@mcilsarahm@mcilsarahm@mcil----mn.orgmn.orgmn.orgmn.org
Tell us how you got started as a DSP- what attracted you about
the position and what were its drawbacks? I wanted to work directly
with people in the health care field. I have enjoyed care giving my entire
life. I am the eldest of 13 children and helped to manage the household while
my parents worked and went to school. People have always told me that I am
good and caring about others and the work is a great fit for me. I have
worked with so many different people over the years and have found my job
to be incredibly fulfilling- it’s a lot of fun. The drawbacks are the low pay and
the split shifts. I think that this has a tremendous affect on the turnover rates
we see in this field.
In the 12 years that you have provided DSP supports, how have
you seen this field evolve? I have seen a lot more concern about the
experience of the staff doing direct support work and much more advocacy
for our workforce. I think that our communities are gaining more appreciation
for what we contribute to the well-being of others and employers seem to be
more interested in creating a good place for DSPs to work. I feel that our
status is rising.
What do you believe is holding back a more organized, informed
and progressive DSP work force movement? I think that it comes
down to a lack of awareness about what is happening in the larger system in
which we operate. I have been doing direct support work for 12 years and
only got engaged beyond my role as a PCA in the last 2 years. I just didn't
know what was happening in terms of workforce development, professionali-
zation, and advocacy; I wasn't connected or plugged-in. We often do isolating
work and lack a shared space where we can connect with our col-
leagues. Communicating with staff in the
field is critical to organizing, informing, and
building a progressive DSP workforce move-
ment.
Some consumers criticize the effort
to “professionalize” DSPs. What can
be gained from this effort? For con-
sumers, the benefits of a professional DSP
would be a greater assurance of receiving
services from someone who is trained and
capable of performing the necessary tasks
that a person needs, such as being able to
transfer a particular person, knowledge of
how to do a bowel program, being educated
in handling emergency situations, etc. A professional will have a set of expec-
tations to live up to. They also need to be appropriate expectations.
What has motivated you to become an advocate not only for the
disability community, but more so for the working DSPs? I was
motivated by my frustration with not feeling respected by the larger commu-
nity for what I do as a career. I have always believed in the importance of
what I have done every day, but, I haven’t felt that I have been valued or rec-
ognized like I should. Consumers have been my strongest allies, I must
add. They have given me more appreciation than anyone.
For the DSPs reading this, what advice can you give them to
challenge those that are apathetic to the unfair work conditions
and inadequate wages and benefits? I would challenge everyone who
wants better working conditions to do something about it. Continuing to be
unhappy and inaction will not help you. It is very liberating to speak up and
to share your experiences- good and bad. There are not enough DSPs doing
that and it gives the impression that we are fine with the status quo. Nothing
changes when you don't change something. Nobody but you cares as much
about the issues you deal with as you do. They're not you, so how can
they? If you simply start to get involved, you will be surprised at the
opportunities there are to turn things around. There's a quote by
Sonia Johnson, "We must remember that one determined person
can make a significant difference, and that a small group of deter-
mined people can change the course of history.”
When you were notified that
you were being honored with
this award, you were speech-
less, yet sincerely grateful for
the recognition. What can
consumers, agencies and the
general community do to en-
sure that DSPs are recognized
for their commitments and
contributions? Consumers can
show appreciation by letting DSPs
know that what they do matters to
them and that they appreciate their
service. They can recognize DSPs by
introducing them to others with an
air of respect toward the DSP. They
can do so much to make the DSP
feel good about what they do. Saying, "Thank You", goes a long way
and treating a DSP as a professional is important to their feeling like a
professional and embracing the work with a professional atti-
tude. Agencies can do a lot to recognize DSPs. They can offer the most
competitive wages possible, create a culture where DSPs feel valued,
respected and a part of the overall organization. Agencies can keep
DSPs informed about issues affecting them so that they know that their
agency wants them to be educated and aware of the bigger system, not
cut off from it. The general community can do a great deal to promote
the recognition of DSPs, such as treating DSPs like they would any other
profession, for example, a nurse, a fire-fighter, a teacher, or another
professional who delivers great value to our communities
Next year MCIL will nominate a new DSP Advocate of the
year, and I have already seen some surprising energy and
interest in DSPS. What advice would you give to encourage
DSPs to successfully become leaders of tomorrow? My ad-
vice is to trust yourself and the importance of your role and just put
yourself out into the mix within the larger community and field you are
a part of. Often, I don't feel prepared for what I get involved with, but I
go for it and I find that a lot of people want to support me. Being a
leader doesn't mean that you have to have experience as a leader or
even feel confident about your own leadership potential. When I first
got involved, I was not self-confident or knowledgeable. But, I was
enthusiastic about using my voice and representing my field. I was
game for anything whether or not I felt capable of accomplishing what-
ever I was attempting. So, get in touch with someone that can support
your leadership, join DSPAM as a volunteer, reach out to another leader,
and take the first step. That's the hardest. You will grow and develop
and you will do a lot of good for your profession. It's very exciting!
Anything else you would like to share with us? I want to make
a plea to other DSPs out there. We need you to represent and to get
involved. The DSP movement can be huge; just look at how many of us
there are- 45,000 just in MN and over 3 million in the U.S.! When
enough of us get together and have our own unified voice, amplified by
each one of us, we will be incredibly powerful and carry a lot of influ-
ence. But, first, we need to join forces- DSP to DSP. Get involved and
leave your mark on the direction of the DSP movement!
Congratulations Bridget Siljander, DSP Advocate of the year!
D S P A D V O C A T E , C O N T .
Page 3F A L L 2 0 0 9 E D I T I O N
• Consumers who wish to
require the H1N1 and/or
other Influenza vaccina-
tions are obligated to
cover all fees associated
with the vaccination.
Employers cannot compel an
employee to cover costs of
mandated items that affect
employment retention.
• If a consumer mandates
that DSPs working in their
home are required to get
vaccinated and a DSP re-
fuses there will be no di-
rect effect on employ-
ment.
PAS staff will assist the DSP in
applying for a more suitable
position.
• As the director of their
cares, the Consumer or
Responsible Party is au-
thorized to determine the
length of leave given to
any DSP showing signs/
symptoms of the flu.
• Any DSP who is given a
“stop work” notice by a
physician must have a
“return to work” authori-
zation (by a physician)
prior to returning to the
workplace.
• DSPs working in homes
where Consumers’ or oth-
ers have become infected
have the choice to con-
tinue to work in that
home or take a leave of
absence until the infection
has passed.
Guidelines for contagiousness
are outlined by the US Depart-
ment of Health (see resources
listed to the right).
• Any DSP who misses work
due to H1N1 or other In-
fluenza infections (whether
due to their own illness or
that of their consumers)
may use any Paid Time Off
they have available.
DSPs can contact PAS HR at
651.603.2033 to check PTO
availability.
DSPAMDSPAMDSPAMDSPAM is seekingis seekingis seekingis seeking
BOARD MEMBERSBOARD MEMBERSBOARD MEMBERSBOARD MEMBERS
forforforfor 2010!2010!2010!2010!
If you are a current direct supportIf you are a current direct supportIf you are a current direct supportIf you are a current direct support
staff, a consumer receiving PCAstaff, a consumer receiving PCAstaff, a consumer receiving PCAstaff, a consumer receiving PCA
services and/or work in the home care fieldservices and/or work in the home care fieldservices and/or work in the home care fieldservices and/or work in the home care field
WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU!
MinnesotaDSPAM@yahoo.com nadsp.org/membership/mn5.asp
P A S A N N O U N C E S H 1 N 1 G U I D E L I N E S F O R
C O N S U M E R S A N D D S P S
Page 4T H E B U L L E T I N
MCIL’s Personal Assistant Services Department does not require Direct Sup-
port Professionals to receive H1N1 or other Influenza vaccinations- however
the following guidelines have been outlined to ensure proactive measures are
supported:
Additional Resources:Additional Resources:Additional Resources:Additional Resources:
Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili-
ties:ties:ties:ties:
www.state.mn.us/portal/mn/jsp/content.do?id=-
536892421&agency=MSCOD
Centers for Disease control and Prevention:Centers for Disease control and Prevention:Centers for Disease control and Prevention:Centers for Disease control and Prevention:
www.cdc.gov/H1N1FLU/
Minute Clinic Locator:Minute Clinic Locator:Minute Clinic Locator:Minute Clinic Locator:
www.minuteclinic.com/en/USA/MN/Clinics.aspx
Flu Prevention:Flu Prevention:Flu Prevention:Flu Prevention:
www.healthline.com
E V E N T S H A P P E N I N G
A T M C I L
Page 5F A L L 2 0 0 9 E D I T I O N
MCIL Social Night! November 17th, December 15th, January 26th.
You are invited to an evening of fun! MCIL is opening its’ doors for anyone who would like a place to come socialize, use our com-
puter, watch a movie, eat, gather information, find an outlet or just chill. This monthly event will begin at 4 pm and go until 6 pm.
You are welcome to stay the whole time, come for an hour or just stop in for a few minutes. We look forward to seeing you!
The Weekenders November 21st, December 12th & January 23rd.
Are you sick of sitting home all weekend? Do you see fun activities and wish you had someone to do them with? Do you find
yourself wanting someone to talk to? Well, this is the group for you. Come meet other people who share your interests and want
someone to hang out with. We will meet once a month from 1-3 pm to share, talk, plan, do activities or outings throughout the
month. Guests are welcome and encouraged!
GLBT Support Group Dec 1st & Jan 12th.
Gay, Lesbian, Bisexual and Transgender (GLBT) with disabilities Support Group meets on the first Tuesday of the month at the Met-
ropolitan Center for Independent Living MCIL, 1600 University Ave W., Suite #16, St Paul, MN. 55104 from 6-7:30 pm (Please note
location change!).
Organization #101 December 1st: 10am-12pm: Do you have piles that are taking your space? Do you wish
you didn’t waste time looking for things you know you have? Come learn techniques that will help you to tackle the piles and find
keys. Come join us for an introductory lesson in organization.
Cooking Classes November 17th, December 15th & January 26th, 1-4pm: Hungry? Don’t know
how or what to make? Come to one or all of our cooking classes. Together we’ll learn to make quick and easy recipes that you can
incorporate into your daily life. Space is limited; please RSVP at least 5 days before the designated day.
Bus & Light Rail Training November 18th 9am-3pm: Have some fun and increase
your understanding and experience with Metro Transit the public bus line and light rail. This will be your
chance to expand beyond Metro Mobility. Many options and more freedom will be opened to you. Join
us for a trip from MCIL to the Mall of America. We will eat lunch, do a little shopping and return. Please
call if you are interested in a lesson. We also have Mentors available that can work one on one with you to achieve independence
on the bus and light rail!
American Sign Language Classes (ASL) November 16th & 30th, December 7th & 14th,
January 11th & 25th:“Let your HANDS do the Talking.” Basic American Sign Language (ASL) class will meet at MCIL on
Mondays from 1 -2 pm, RSVP 651-603-2027 or e-mail sheilaf@mcil-mn.org
Open Technology Lab Wednesday’s from 1-4 pm: Please take this opportunity to learn about the computer
including programs like Word, Excel, Dragon Naturally Speaking, check/set up emails, learn to safely surf the Internet, how to ac-
cess games and more. *Hourly time slots are available for the four computers that are available, so
please call ahead.
To confirm your participation, please RSVP for events at:
651-603-2028 or email corbettl@mcil-mn.org.
1600 University Ave west
Suite 16
Saint Paul, MN 55104
www.pas.mcilwww.pas.mcilwww.pas.mcilwww.pas.mcil----mn.orgmn.orgmn.orgmn.org
P E R S O N A L A S S I S T A N T S E R V I C E S
To assist consumers, DSPs, advocates and concerned citizens with express-
ing their concerns, frustrations and comments regarding recent legislative
changes to the PCA program, MCIL launched the You need to hear me” hot-
line. Incoming calls are anonymous. A volunteer checks the messages on a
weekly basis, transcribes the messages and prepares for review by CIL staff
and then they are forwarded to DHS policy staff, The State Commissioner
and Representatives.
Frustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assign
individual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes and
decreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will take
back even more in DSP wages and benefits?back even more in DSP wages and benefits?back even more in DSP wages and benefits?back even more in DSP wages and benefits?
Please call the hotline today!Please call the hotline today!Please call the hotline today!Please call the hotline today!
“ Y O U N E E D T O H E A R M E ”
H O T L I N E

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Bulletin 2009

  • 1. CongratulationsCongratulationsCongratulationsCongratulations 2009 Outstanding2009 Outstanding2009 Outstanding2009 Outstanding DSP Recipients:DSP Recipients:DSP Recipients:DSP Recipients: Craig JohnsonCraig JohnsonCraig JohnsonCraig Johnson Rebecca WhitmanRebecca WhitmanRebecca WhitmanRebecca Whitman Bridget SiljanderBridget SiljanderBridget SiljanderBridget Siljander other focus groups to ensure that consumers receive the information and resources necessary to understand these changes and to make informed choices about their services. One of the changes that isn’t getting communi- cated very well, is that when consumers are re-when consumers are re-when consumers are re-when consumers are re- assessed prior to theirassessed prior to theirassessed prior to theirassessed prior to their actual service renewalactual service renewalactual service renewalactual service renewal date, those consumersdate, those consumersdate, those consumersdate, those consumers will loose any bankedwill loose any bankedwill loose any bankedwill loose any banked hours that they had,hours that they had,hours that they had,hours that they had, as the service update or re- The Department of Hu- man Services (DHS) be- gan mailing out notices of the upcoming service up- dates and reassessments that will take place begin- ning in January 2010 thru July 2010. This news was neither a trick, nor a treat for the thousands of Minnesotan's who receive PCA services. Due to aDue to aDue to aDue to a drastic change in thedrastic change in thedrastic change in thedrastic change in the Home Care ratings sys-Home Care ratings sys-Home Care ratings sys-Home Care ratings sys- tem, many individual’stem, many individual’stem, many individual’stem, many individual’s are going to see on aver-are going to see on aver-are going to see on aver-are going to see on aver- age, a reduction of fifteenage, a reduction of fifteenage, a reduction of fifteenage, a reduction of fifteen minutes per dayminutes per dayminutes per dayminutes per day–––– doesn’t sound like much, but when you consider this is a loss of nearly 2.5 hours a week, 10 hours a month and 130 hours a year, you can see that this savings measure for the State is causing some very real problems for the consumers who use their PCA services to remain independent in their home, communities and even at work . Staff in the PAS program have been working with the Consortium for Citi- zens with Disabilities (www.mnccd.org) and D H S A N N O U N C E S E L I G I B I L I T Y C H A N G E S , B E G I N S S E R V I C E R E A S S E S S M E N T S F O R J A N U A R Y 2 0 1 0 S T A N D A R D I Z E D T R A I N I N G O N I T S W A Y F O R 2 0 1 0 Starting January 01, 2010 any new hire that is working with a PCA agency will be expected to go through a new standardized training program developed by DHS. New hire’s will have seven days from the date of hire to complete and suc- cessfully pass this training. The good news is, once the DSP com- pletes the training, they are good for a year, if they wish to work for multi- ple agencies. DSPs that are al- ready employed by an agency will have one year from January 01, 2010 to take the test and pass. DHS is considering allowing for a competency test-out option for staff that have been working suc- cessfully in the field for many years. Currently the recommended ore competencies are under review with a focus group that PAS staff Brigette Menger-Anderson and Sarah Murphy attend and have input in. MCIL will revise their current training materials to include the standardized core materials, and will make the new training a prerequisite before processing any new hires after January 01, 2010. More information to come. PERSONALASSISTANT SERVICES N E W S F O R T H E D I S A B I L I T Y C O M M U N I T Y F A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O NF A L L 2 0 0 9 E D I T I O N T H E B U L L E T I N I N S I D E T H I S I S S U E : R E A S S E S S M E N T , C O N T . 2 D S P A D V O C A T E O F T H E Y E A R : A N I N T E R V I E W 2 - 3 F L U G U I D E L I N E S A N D R E S O U R C E S 4 M C I L C A L E N D A R O F E V E N T S 5 “ Y O U N E E D T O H E A R M E ” H O T L I N E 6
  • 2. assessment will create a revision in their cur- rent service agreement, and as a result, con- sumers can’t use the hours that were banked and agencies can’t bill for those banked hours either; the service agreement revision will not include those banked hours in the new allocation. PAS staff are going through DHS sponsored training to better under- stand these changes. We will then schedule time to meet with con- sumers to discuss these changes and to assist consumers with prepar- ing for a possible reduc- tion in their services. PAS staff will also havePAS staff will also havePAS staff will also havePAS staff will also have access to the knowl-access to the knowl-access to the knowl-access to the knowl- edge and resources ofedge and resources ofedge and resources ofedge and resources of the Disability Linkagethe Disability Linkagethe Disability Linkagethe Disability Linkage Line staff and MCIL ad-Line staff and MCIL ad-Line staff and MCIL ad-Line staff and MCIL ad- vocates.vocates.vocates.vocates. While PAS staff cannot assist con- sumers with the appeal process, should this become a desired op- tion, the PAS staff canthe PAS staff canthe PAS staff canthe PAS staff can get consumers con-get consumers con-get consumers con-get consumers con- nected to staff at MCILnected to staff at MCILnected to staff at MCILnected to staff at MCIL at no cost to the con-at no cost to the con-at no cost to the con-at no cost to the con- sumer.sumer.sumer.sumer. The PAS team has also recently revised the Consumer Care Plan and have begun to schedule appointments with consumers to de- velop a new Consumer Support Plan. We are confident that this new Plan will capture with more detail, the level of supports that the con- sumer needs to meet their goals of independ- ent living. The new sup- port plan includes a section on consumer- directed standard oper- ating procedures, or “house rules.” It is our hope that having guide- lines and rules about expectations, breaks, smoking, visitors, etc., will limit the need for agency involvement and intervention. The plan also includes a section where all new hires will sign-off on the Support Plan, review a state- ment of acknowledge- ment about PCA billing and Medical Assistance fraud and their respon- sibility to keep their Bridget Siljander has been a direct sup- port professional (DSP) since completing high school. In college Bridget graduated Suma Cum Laude, which is impressive in itself, but consider- ing she was also a single mother to her daughter, Imani who has cerebral palsy, you might already think of her as super woman, before you learn another thing about her! She is currently involved with DSPAM as the Board President; College of Direct Support as a curriculum author; Direct Care Alliance as the Voices Institute Coordinator; she is self- employed as a private home health aide (10 years for the same consumer), has worked as DSP with MCIL and is a DSP representative for the Alliance for Full Participation. The following page is excerpts from an inter- view between the PAS Program Manager, Brigette Menger-Anderson and Bridget Sil- jander. R E A S S E S S M E N T C O N T . Page 2T H E B U L L E T I N A N I N T E R V I E W W I T H D S P A D V O C A T E O F T H E Y E A R " We must remember that one determined person can make a significant difference, and that a small group of determined people can change the course of history.” Sonia Johnson contact information cur- rent with the consumer and agency at all times, and a place to docu- ment their contact infor- mation. This will also assist consumers with tracking dates of hire, and having contact in- formation readily avail- able. We encourage consum- ers to start scheduling appointments with Sarah Murphy, the PAS Consumer Supports Co- ordinator and Qualified Professional, starting in December. Sarah can be reachedSarah can be reachedSarah can be reachedSarah can be reached at 651.603.2039 orat 651.603.2039 orat 651.603.2039 orat 651.603.2039 or sarahm@mcilsarahm@mcilsarahm@mcilsarahm@mcil----mn.orgmn.orgmn.orgmn.org
  • 3. Tell us how you got started as a DSP- what attracted you about the position and what were its drawbacks? I wanted to work directly with people in the health care field. I have enjoyed care giving my entire life. I am the eldest of 13 children and helped to manage the household while my parents worked and went to school. People have always told me that I am good and caring about others and the work is a great fit for me. I have worked with so many different people over the years and have found my job to be incredibly fulfilling- it’s a lot of fun. The drawbacks are the low pay and the split shifts. I think that this has a tremendous affect on the turnover rates we see in this field. In the 12 years that you have provided DSP supports, how have you seen this field evolve? I have seen a lot more concern about the experience of the staff doing direct support work and much more advocacy for our workforce. I think that our communities are gaining more appreciation for what we contribute to the well-being of others and employers seem to be more interested in creating a good place for DSPs to work. I feel that our status is rising. What do you believe is holding back a more organized, informed and progressive DSP work force movement? I think that it comes down to a lack of awareness about what is happening in the larger system in which we operate. I have been doing direct support work for 12 years and only got engaged beyond my role as a PCA in the last 2 years. I just didn't know what was happening in terms of workforce development, professionali- zation, and advocacy; I wasn't connected or plugged-in. We often do isolating work and lack a shared space where we can connect with our col- leagues. Communicating with staff in the field is critical to organizing, informing, and building a progressive DSP workforce move- ment. Some consumers criticize the effort to “professionalize” DSPs. What can be gained from this effort? For con- sumers, the benefits of a professional DSP would be a greater assurance of receiving services from someone who is trained and capable of performing the necessary tasks that a person needs, such as being able to transfer a particular person, knowledge of how to do a bowel program, being educated in handling emergency situations, etc. A professional will have a set of expec- tations to live up to. They also need to be appropriate expectations. What has motivated you to become an advocate not only for the disability community, but more so for the working DSPs? I was motivated by my frustration with not feeling respected by the larger commu- nity for what I do as a career. I have always believed in the importance of what I have done every day, but, I haven’t felt that I have been valued or rec- ognized like I should. Consumers have been my strongest allies, I must add. They have given me more appreciation than anyone. For the DSPs reading this, what advice can you give them to challenge those that are apathetic to the unfair work conditions and inadequate wages and benefits? I would challenge everyone who wants better working conditions to do something about it. Continuing to be unhappy and inaction will not help you. It is very liberating to speak up and to share your experiences- good and bad. There are not enough DSPs doing that and it gives the impression that we are fine with the status quo. Nothing changes when you don't change something. Nobody but you cares as much about the issues you deal with as you do. They're not you, so how can they? If you simply start to get involved, you will be surprised at the opportunities there are to turn things around. There's a quote by Sonia Johnson, "We must remember that one determined person can make a significant difference, and that a small group of deter- mined people can change the course of history.” When you were notified that you were being honored with this award, you were speech- less, yet sincerely grateful for the recognition. What can consumers, agencies and the general community do to en- sure that DSPs are recognized for their commitments and contributions? Consumers can show appreciation by letting DSPs know that what they do matters to them and that they appreciate their service. They can recognize DSPs by introducing them to others with an air of respect toward the DSP. They can do so much to make the DSP feel good about what they do. Saying, "Thank You", goes a long way and treating a DSP as a professional is important to their feeling like a professional and embracing the work with a professional atti- tude. Agencies can do a lot to recognize DSPs. They can offer the most competitive wages possible, create a culture where DSPs feel valued, respected and a part of the overall organization. Agencies can keep DSPs informed about issues affecting them so that they know that their agency wants them to be educated and aware of the bigger system, not cut off from it. The general community can do a great deal to promote the recognition of DSPs, such as treating DSPs like they would any other profession, for example, a nurse, a fire-fighter, a teacher, or another professional who delivers great value to our communities Next year MCIL will nominate a new DSP Advocate of the year, and I have already seen some surprising energy and interest in DSPS. What advice would you give to encourage DSPs to successfully become leaders of tomorrow? My ad- vice is to trust yourself and the importance of your role and just put yourself out into the mix within the larger community and field you are a part of. Often, I don't feel prepared for what I get involved with, but I go for it and I find that a lot of people want to support me. Being a leader doesn't mean that you have to have experience as a leader or even feel confident about your own leadership potential. When I first got involved, I was not self-confident or knowledgeable. But, I was enthusiastic about using my voice and representing my field. I was game for anything whether or not I felt capable of accomplishing what- ever I was attempting. So, get in touch with someone that can support your leadership, join DSPAM as a volunteer, reach out to another leader, and take the first step. That's the hardest. You will grow and develop and you will do a lot of good for your profession. It's very exciting! Anything else you would like to share with us? I want to make a plea to other DSPs out there. We need you to represent and to get involved. The DSP movement can be huge; just look at how many of us there are- 45,000 just in MN and over 3 million in the U.S.! When enough of us get together and have our own unified voice, amplified by each one of us, we will be incredibly powerful and carry a lot of influ- ence. But, first, we need to join forces- DSP to DSP. Get involved and leave your mark on the direction of the DSP movement! Congratulations Bridget Siljander, DSP Advocate of the year! D S P A D V O C A T E , C O N T . Page 3F A L L 2 0 0 9 E D I T I O N
  • 4. • Consumers who wish to require the H1N1 and/or other Influenza vaccina- tions are obligated to cover all fees associated with the vaccination. Employers cannot compel an employee to cover costs of mandated items that affect employment retention. • If a consumer mandates that DSPs working in their home are required to get vaccinated and a DSP re- fuses there will be no di- rect effect on employ- ment. PAS staff will assist the DSP in applying for a more suitable position. • As the director of their cares, the Consumer or Responsible Party is au- thorized to determine the length of leave given to any DSP showing signs/ symptoms of the flu. • Any DSP who is given a “stop work” notice by a physician must have a “return to work” authori- zation (by a physician) prior to returning to the workplace. • DSPs working in homes where Consumers’ or oth- ers have become infected have the choice to con- tinue to work in that home or take a leave of absence until the infection has passed. Guidelines for contagiousness are outlined by the US Depart- ment of Health (see resources listed to the right). • Any DSP who misses work due to H1N1 or other In- fluenza infections (whether due to their own illness or that of their consumers) may use any Paid Time Off they have available. DSPs can contact PAS HR at 651.603.2033 to check PTO availability. DSPAMDSPAMDSPAMDSPAM is seekingis seekingis seekingis seeking BOARD MEMBERSBOARD MEMBERSBOARD MEMBERSBOARD MEMBERS forforforfor 2010!2010!2010!2010! If you are a current direct supportIf you are a current direct supportIf you are a current direct supportIf you are a current direct support staff, a consumer receiving PCAstaff, a consumer receiving PCAstaff, a consumer receiving PCAstaff, a consumer receiving PCA services and/or work in the home care fieldservices and/or work in the home care fieldservices and/or work in the home care fieldservices and/or work in the home care field WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU!WE WANT TO HEAR FROM YOU! MinnesotaDSPAM@yahoo.com nadsp.org/membership/mn5.asp P A S A N N O U N C E S H 1 N 1 G U I D E L I N E S F O R C O N S U M E R S A N D D S P S Page 4T H E B U L L E T I N MCIL’s Personal Assistant Services Department does not require Direct Sup- port Professionals to receive H1N1 or other Influenza vaccinations- however the following guidelines have been outlined to ensure proactive measures are supported: Additional Resources:Additional Resources:Additional Resources:Additional Resources: Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili-Emergency Preparedness for people with disabili- ties:ties:ties:ties: www.state.mn.us/portal/mn/jsp/content.do?id=- 536892421&agency=MSCOD Centers for Disease control and Prevention:Centers for Disease control and Prevention:Centers for Disease control and Prevention:Centers for Disease control and Prevention: www.cdc.gov/H1N1FLU/ Minute Clinic Locator:Minute Clinic Locator:Minute Clinic Locator:Minute Clinic Locator: www.minuteclinic.com/en/USA/MN/Clinics.aspx Flu Prevention:Flu Prevention:Flu Prevention:Flu Prevention: www.healthline.com
  • 5. E V E N T S H A P P E N I N G A T M C I L Page 5F A L L 2 0 0 9 E D I T I O N MCIL Social Night! November 17th, December 15th, January 26th. You are invited to an evening of fun! MCIL is opening its’ doors for anyone who would like a place to come socialize, use our com- puter, watch a movie, eat, gather information, find an outlet or just chill. This monthly event will begin at 4 pm and go until 6 pm. You are welcome to stay the whole time, come for an hour or just stop in for a few minutes. We look forward to seeing you! The Weekenders November 21st, December 12th & January 23rd. Are you sick of sitting home all weekend? Do you see fun activities and wish you had someone to do them with? Do you find yourself wanting someone to talk to? Well, this is the group for you. Come meet other people who share your interests and want someone to hang out with. We will meet once a month from 1-3 pm to share, talk, plan, do activities or outings throughout the month. Guests are welcome and encouraged! GLBT Support Group Dec 1st & Jan 12th. Gay, Lesbian, Bisexual and Transgender (GLBT) with disabilities Support Group meets on the first Tuesday of the month at the Met- ropolitan Center for Independent Living MCIL, 1600 University Ave W., Suite #16, St Paul, MN. 55104 from 6-7:30 pm (Please note location change!). Organization #101 December 1st: 10am-12pm: Do you have piles that are taking your space? Do you wish you didn’t waste time looking for things you know you have? Come learn techniques that will help you to tackle the piles and find keys. Come join us for an introductory lesson in organization. Cooking Classes November 17th, December 15th & January 26th, 1-4pm: Hungry? Don’t know how or what to make? Come to one or all of our cooking classes. Together we’ll learn to make quick and easy recipes that you can incorporate into your daily life. Space is limited; please RSVP at least 5 days before the designated day. Bus & Light Rail Training November 18th 9am-3pm: Have some fun and increase your understanding and experience with Metro Transit the public bus line and light rail. This will be your chance to expand beyond Metro Mobility. Many options and more freedom will be opened to you. Join us for a trip from MCIL to the Mall of America. We will eat lunch, do a little shopping and return. Please call if you are interested in a lesson. We also have Mentors available that can work one on one with you to achieve independence on the bus and light rail! American Sign Language Classes (ASL) November 16th & 30th, December 7th & 14th, January 11th & 25th:“Let your HANDS do the Talking.” Basic American Sign Language (ASL) class will meet at MCIL on Mondays from 1 -2 pm, RSVP 651-603-2027 or e-mail sheilaf@mcil-mn.org Open Technology Lab Wednesday’s from 1-4 pm: Please take this opportunity to learn about the computer including programs like Word, Excel, Dragon Naturally Speaking, check/set up emails, learn to safely surf the Internet, how to ac- cess games and more. *Hourly time slots are available for the four computers that are available, so please call ahead. To confirm your participation, please RSVP for events at: 651-603-2028 or email corbettl@mcil-mn.org.
  • 6. 1600 University Ave west Suite 16 Saint Paul, MN 55104 www.pas.mcilwww.pas.mcilwww.pas.mcilwww.pas.mcil----mn.orgmn.orgmn.orgmn.org P E R S O N A L A S S I S T A N T S E R V I C E S To assist consumers, DSPs, advocates and concerned citizens with express- ing their concerns, frustrations and comments regarding recent legislative changes to the PCA program, MCIL launched the You need to hear me” hot- line. Incoming calls are anonymous. A volunteer checks the messages on a weekly basis, transcribes the messages and prepares for review by CIL staff and then they are forwarded to DHS policy staff, The State Commissioner and Representatives. Frustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assignFrustrated with the wait time to process DSP background Checks and assign individual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes andindividual Provider numbers? Upset with the Home Care Rating changes and decreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will takedecreased hours for consumers? Afraid the next legislative session will take back even more in DSP wages and benefits?back even more in DSP wages and benefits?back even more in DSP wages and benefits?back even more in DSP wages and benefits? Please call the hotline today!Please call the hotline today!Please call the hotline today!Please call the hotline today! “ Y O U N E E D T O H E A R M E ” H O T L I N E