1. Rehab Continuum
Thru Social Media
TryMunity.com

2. TryMunity PSA
• Play Video

3. I Am
• I Am Not a Medical Professional.
• I am a Mother who is a caregiver of a Traumatic
Brain Injury Survivor.
• I am a person who lives with TBI every day, just
like many of you.
• I am Someone who has a story to share and I
hope that after this presentation, you will have
learned from my experience, and the experience
of my Son, my husband and my family
• I am Bernadette Coleman, CEO of Advice
Interactive Group, a Internet Marketing
Company & Co Founder of TryMunity and I am
here today to tell you why Social Media Matters!

4. Disclaimer
• Some of the slides you are about to see
are very graphic. The story I am going to
share with you today is a story of how
social media helped with the care and
rehab of My Son. Without these images
it’s just a story. With these images it is a
True Story of hope, hard work and
recovery.
• So let me begin…

5. WAIT!
You should know that we are
LIVE Streaming this presentation
JustinTV.com/trymunity
Oh how I love Social Media!

6. Meet Mike Black

7. May 21st 2011 Our World Changed

8. Time Will Tell

9. Share His Recovery Progress

10. People Connecting World Wide
Connected
with us
from
Norway!

11. Prayers Flowed In
At one point we
had prayer
groups of over
200 Prisons,
Churches and
their members
praying for Mike.

12. Hard at Rehab

13. Long road to recovery

14. Learned to speak again

15. Learn to Stand & Walk Again

16. Cheap Labor

17. Skype Saves The Day

18. Skype

19. Social Media & Recovery
We started using Social Media from the
beginning:
• To update on Mikes progress
• Communication
• To talk to other Survivors
• To search for TBI information
• To document his recovery
• To search for resources/help

20. Back To Orlando

21. Trauma Team

22. Hi Bernadette!
How exciting! As a provider, my only thoughts are that TBI is not really
publicized in media. We need more of an awareness regarding this frequently
occurring and devastating injury. Brain injury awareness month is never
mentioned. Yet we hear about breast cancer in October, heart disease in
February, etc.
I am so glad to hear Mike is doing well. I would love to see him when he is
here in Orlando! I think about all of you every day!
Also, I have been wanting to thank you for my nomination for Nurse of the
Year. It was such a surprise and honor to be recognized. Thank you and Tom
for taking the time and submitting all those kind words.
Good luck at your talk! Keep me posted and tell Mike I look forward to seeing
him soon!
Suzanne

23. Heroes

24. First Responders

25. Exchanged Gifts

26. What Goes Around…

27. Texting
Texting & Driving is a No-No
BUT
Texting after TBI?
YES!

28. First Attempts At Social Media

29. • Show him facebook to remind him where
he was

30. TryMunity is Here!!!

31. TryMunity Video
• Play Video

32. TryMunity
Is this the
new
Facebook?

33. Common comments on TryMunity
Hundreds of people
who live with TBI
have joined the site

34. Live Stream The Launch of Trymunity
at Pate Rehab Launch Party

35. How Does TBI affect a Survivor?
What happened to Mike:
• Social activity is limited
• World is limited to family & service
providers
• Reduced social support
• Loss of meaningful friendships
• Problems making new social connections
• Loss of career
• Loss of mobility and accessibility
• Loss of independence

36. What happens?
For Many TBI Survivors:
• World Shrinks
• High Risk for Anxiety
• Causes Depression
• Lack of Motivation
• Increase Financial Stress
& Burden

37. Mike’s New Social Connections
What Does Social Media Do?
• Maintain & improves social support
• Establish personal connections
• Adds to current social network
• Decreases social isolation
• Improves community reintegration
• Increases opportunities

38. What are the benefits?
• A new practice of social interaction
• Source of information and knowledge
• Accessible at anytime of day
• Not dependent on community programs
• Do not have to reveal disability
• Increases opportunities
for income

39. What are the Problems He Faced?
• Cyberspace is not universally accessible
• Physical, cognitive and technological
barriers
• Problem is not lack of desire to use the
internet, but lack of knowledge and
access & training
• Motor deficits using keyboard and mouse
• Cognitive/language impairment
• Challenging social interactions
• Fatigue

40. What are the risks?
• Privacy: loss of personal/financial data
• Online predators (Girlfriend?)
• Exposure to unknown people
• Inappropriate social contact
• Personal Difficulties
• Understanding privacy settings
• Logging in/out
• Sharing personal
information

41. Inappropriate Social Contact
Participants need to reflect and consider:
We had to keep reminding him of the rules.
– How well do I know this person?
– Do I want to share this with this person?
– Do I remember that if I post on their wall,
the information is shown to all of my
friends and their friends?
– Be careful what you say
– Be careful what you do

42. What are The Solutions?
If Only…
• Internet training for individuals with TBI:
• Accessibility to the technology through
places like the library
• Coverage of tools by
insurance
• State programs

43. Facebook
A Whole New World..
• Facebook Social networking website 500
million users More than 70 languages
• Interact with others,
• share content with others,
• play games

44. Special Thanks

45. In summary
Reconfirmed that persons with TBI have
specific barriers and challenges to using
online social networks.
• Essential starting points needed
• basic computing skills
• computer/internet access
• basic social skills
• education and support for the family
by agencies to increase understanding
of the Internet & Computers

46. But Wait! I’m Not Done!

47. Lets Take A Test
Go To:
http://www.freemobilepolls.com
Enter Your Name
1454

48. What is Advocacy?
Advocacy is the art of persuasion –
• Advocacy is about trying to influence
outcomes — (including public-policy and
resource allocation) that directly affect
people’s lives.

49. What is Social Media?
• “Social media are online communications
in which individuals shift fluidly and
flexibly between the role of audience and
author.
• To do this, they use social software that
enables anyone (no technical skills
needed) to post, comment on, share
content and to form communities around
shared interests.”

50. Advocacy and Social Media
• “Social media are online communications
in which individuals shift fluidly and
flexibly between the role of audience and
author.
• To do this, they use social software that
enables anyone (no technical skills
needed) to post, comment on, share
content and to form communities around
shared interests.”

51. Enough Technical Stuff…

52. Transform Your Advocacy!

53. How Can We Use Social Media?

54. What About Everyone Else?

55. Who Conducts Research Online?
Of Users Conduct Research Online

56. Who Searches On Google?

57. Are We Out Of Control?

58. What Are We Doing?

59. What Are We Talking About?
Of adults have posted comments or
reviews online about the things they
care about.

60. How Do We Spend Our Time?

61. We Are Talking To Each Other

62. What Are We Reading?

63. Why Am I Telling You This?

64. Building The Movement

65. Why Is It Important To Your cause?

66. I Know We Are All Busy But…

67. Create A Facebook Page

68. Like A Facebook Page

69. Tweet:Use A Hashtag: #trymunity

70. What’s a Hashtag?
A Twitter hashtag is simply a keyword phrase, spelled out
without spaces, with a pound sign (#) in front of it.
For example, #BrainInjury and #TBI are both hashtags.
What does a hashtag do?
A Twitter hashtag ties the conversations of different users into
one stream, which you can find by searching the hastag in
Twitter Search
https://twitter.com/search-home

71. Create A Blog

72. Post Videos On You Tube

73. Connect On Google Brand Pages

74. Post An Event On Vimeo

75. Still Don’t Get Social Media?

76. What Can You Do?
• If you are interested in promoting TBI
awareness through social media…
• CALL Bernadette Coleman
• 469-269-0411
• info@trymunity.com
• Tell everyone, Survivors, Family members
and you! JOIN TryMunity.com

77. The Bean
• Play Video