Workshop Pamela Oiler -­‐ National Coalition for Cancer Survivorship, National Association of Social Workers, and Oncology Nursing Society Social Work, University of Wyoming Family Residency Program ABSTRACT: This is an introduction to the Cancer Survivor Toolbox which teaches professionals to care for cancer survivors in a geographically, culturally, and socio-­‐economically sensitive manner. Upon completion of this course, participants will be aware of the entire scope of the cancer experience and have comprehensive resource information both for themselves and

2. The First Step to Cancer Survival ™

6. Audio clip

9. To teach newly diagnosed cancer survivors, their caregivers, and those who have been living with cancer for some time, important life skills that foster empowerment and successful self-advocacy.

11. How it all started……

12. Only 25% of oncology nurses and oncology social workers believe their clients have the skills needed to be active partners in the health care team.

13. “ The Toolbox helped me in communicating with my doctors, with decision-making, and especially finding information and knowing web sites that will continue to keep me updated. Also gives me hope . A wonderful resource I have listened to and will listen to. Thank You.” - Survivor, 4/25/2010

15. “ I give this to everyone with the caveat that if they do not find it helpful, they should return it to me. I have only gotten one set back.” – Nurse 12/3/2009

17. “ "It gets to the heart of the matter that these patients are dealing with daily. They are scared about their disease, their treatment, how they are going to pay for their treatment and dying. This Toolbox provides them resources to find answers without someone telling them that they " don't need to worry about that ." – Nurse 12/8/2009

19. “ The Cancer Survival Toolbox has helped me feel more in control of complex health issues, dealing with past cancer diagnosis, and now leukemia. I know where to start and don’t feel so alone.” - Survivor, 3/17/2010

25. Wyoming Top Cancer Incidence Sites - 2008 (Wyoming Department of Health) Total Male Female Prostate 453 Prostate 453 Breast 334 Breast 343 Lung 155 Lung 136 Lung 291 Colorectal 122 Colorectal 100 Colorectal 222 Bladder 93 Uterine 63 Bladder 130 Oral Cavity 66 Melanoma 63

26. Wyoming Cancer Control Plan: Incidence of Cancer in Wyoming Cancer Site # of Cases Diagnosed in 2008 Prostate 448 Breast (females only) 339 Lung 280 Colorectal 218 Bladder (with in situ) 127

29. Wyoming Cancer Control Plan: Mortality in Wyoming Cancer Site # Deaths in 2008 Lung 224 Colorectal 87 Ill-defined 73 Pancreas 59 Breast 52 Prostate 52

34. Wyoming Cancer Control Plan: Tobacco Focus Area 2003 (baseline) 2009 (Progress) % adults using tobacco 32.7% 32.8% % adults tried quitting smoking 47.1% 50.1% %high school students using tobacco 26% 22.1% % high school students who tried to quit 57.8% 55.3% % workplace doesn’t allow smoking 78.5% 81.3%

35. Wyoming Cancer Control Plan: Diet, Exercise &Weight Control Focus Area 2003 (baseline) 2009 (progress) % adults eating five+ fruits/vegetables per day 22.1% 20.9% % adults meeting physical activity requirements 55.4% 57.3% % adults: no physical activity beyond work 21.1% 26.6% % adults who are obese 20.1% 25.4% % youth eating five + fruits/vegetables per day 23% 19.1% % youth getting sufficient physical activity 32.3% 48.9%

36. Wyoming Cancer Control Plan: Ultraviolet Exposure Focus Area 2003 (baseline) 2008 (progress) % adults reporting burns from the sun in past year 48.2% 47.1%

37. Wyoming Cancer Control Plan: Radon Focus area 2003 Baseline 2008 Progress % of households tested for radon 26% 29% % residents who know radon exposure is a risk factor for lung cancer 57.8% 71%

38. Wyoming Cancer Control Plan: Breast and Cervical Cancer Focus Area 2003 (baseline) 2009 (progress) % females over 40 years of age receiving a mammogram 69.6% 66% % females 18 and older receiving a pap test 83.2% 71.9%

39. Wyoming Cancer Control Plan: Colorectal Cancer Focus Area 2003 (baseline) 2009 (baseline) % of people 50 and older who had sigmoidoscopy or colonoscopy 50.9% 56.4% % of people 50 and older who had a blood stool test 18.5% 14.3%

40. Wyoming Cancer Control Plan: Healthcare Access Focus Area 2003 (baseline) 2009 (progress) % Adults with no healthcare provider 23.9% 26.2% % adults unable to receive care due to cost 12.5% 12.4% % adults w/o any healthcare coverage 19.9% 19.3%

43. Saying what you need to say in ways that make it clear to others that what you have to say is important.

45. Audio Clip Experience of a newly diagnosed patient

79. Premise: Insurance problems can pose barriers to getting quality cancer care. Finding and paying for care is difficult, but not impossible.

80. Goal: Help survivors prepare for and cope with the challenges of paying for care, medicines, and supplies, when dealing with cancer and its treatment.

82. As a caregiver, it is easy to be overwhelmed by caring for a cancer survivor. An important point to remember is that you, as a caregiver, are also a survivor because you, too, are surviving the challenges, responsibilities, and life-changing effects of this disease and its treatment. Goal: To assist the caregiver in meeting his or her individual needs, while providing the best care and attention to the cancer survivor.

97. Available at no cost! To order, call toll-free: 877-NCCS-YES 877-622-7937 Listen, read or order online: www.canceradvocacy.org Also Available: In Spanish In Chinese (print only)

98. Please complete an evaluation form