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:: TBI and Resources in
   Rural America
                 A Supplement to the “Quick Guide”


                     Census data in the last decade indicates that
                     over 60 million people, or approximately 21% of
                     Americans, live in rural areas.
Schopp, Johnstone,
  and Reid-Arndt
      (2005)         People in rural areas have been found to be
                     more likely to have difficulty obtaining medical
                     and psychological resources than members of
                     urban societies. Over half of counties in the U.S.
                     do not have psychologists, social workers, or
                     psychiatrists and over 70% of shortages in
                     federal mental health services are found in
                     rural areas.



WHY IS THIS PRODUCT IMPORTANT (THE PROBLEM OF ABI IN
THIS POPULATION, CURRENT GAPS, AND THE PURPOSE OF THE
PRODUCT)?
   As seen below, it is evident that rural areas experience deficits in
   treatment resources, including those for TBI. The related product
   sheds light on these concerns and offers ideas for change.
   Practices within rural communities and urban-centered options
   are proposed.
THE SCOPE OF THE PROBLEM
                     Traumatic brain injury (TBI) itself has 1.5 to 2
   Johnstone,        million sufferers a year, nationally. The cost for
Nossaman, Schopp,
                     TBI treatment ranges from $9 to $10 billion for
 Holmquist, and
 Rupright (2002)     emergency and rehabilitative care, however,
                     persons with TBI in rural areas tend to have the
                     most difficulty a receiving such treatment.


                     Among Americans ages one to fifty-three,
                     accidental injury is a leading cause of death.
                     Typically, members of rural populations incur
                     an atypically high number of such fatal injuries.
                     As a rule of thumb, accident rates increase the
 Coben, Tiesman,     more rural (sparse) the area. For injuries that
  Bossarte, and      can result in TBI, rural areas attribute their
  Furbee (2009)
                     fatal accidents to motor vehicle incidents, falls
                     and poisonings, unlike urban areas, whose high
                     accident rates align with assaults. Per capita,
                     hospital costs for accidental injuries are highest
                     for rural areas. The high rate of injury in these
                     regions has drawn attention to needed
                     prevention and intervention programs there.



 Stallones, Gibbs-
                     In Colorado, for example, incidence of TBI is
Long, Gabella, and
 Kakefuda (2008)     higher in rural counties than in urban counties,
                     and, in Iowa, vehicular accidents and falls have
 Schootman and       a higher incident rate in rural counties.
 Fuortes (1999)
Traumatic brain injuries that result in death
                    often occur in the workplace. Following
                    construction workers, employees in the
 Tiesman, Konda,    agriculture, forestry, and fishing industries are
  and Bell (2011)   most likely to incur fatal TBIs. A call for care
                    has been made for members of these groups,
                    likely to reside in rural areas, seeking
                    preventative measures on these work sites.


                    WHAT ARE THE COMMON SHORT AND
                    LONG TERM DIFFICULTIES THAT
                    THIS GROUP MAY EXPERIENCE?
                    Trauma care systems exist in the US for the
                    sake of transporting injured persons to the most
                    accessible facility providing services for a
  Tiesman et al.    designated injury. Unfortunately, greatest
      (2007)        accessibility is in urban areas. In rural areas,
                    travel is less efficient (longer, farther) between
                    patient retrieval and appropriate facilities.
                    Because immediate care of TBI contributes to a
                    more positive prognosis, speedy hospital arrival
                    is key. In the long-term, delays in urgent care
                    can contribute to patient death following TBI.


                    In rural areas, such as regions of Missouri,
                    where a third of the population lives outside of
                    metropolitan areas, a common obstacle to care
                    for TBI is a lack of resources. Necessary
                    practitioners for care, such as
   Johnstone,       neuropsychologists and rehabilitation
Nossaman, Schopp,   psychologists with training in brain injury, are
 Holmquist, and
 Rupright (2002)
not accessible. Fewer rehabilitation sites,
                     psychologists, physiatrists, and support groups
                     are found in rural areas than in cities. Less
                     than a fifth of a state’s licensed practitioners
                     may be found in a rural region. Typically,
                     clients have to receive urgent care in an urban
                     setting then return to the city for ongoing
                     treatment, see a general practitioner in their
                     rural community or terminate care altogether.

                     As of a year to year-and-a-half following TBI,
                     survivors in rural areas are more likely to be
                     dependent on others and less advanced in
  Schootman and      recovery than those in urban areas. Reasons for
  Fuortes (1999)     this difference include cause of injury, care
                     immediately following injury, long-term/rehab
                     care, and community supports. Notably, quality
                     and quantity of care is notably different
                     between urban and rural populations.
                     Specifically, in Iowa, a structured trauma care
                     system is not available.


                     WHAT ARE RISK AND PROTECTIVE
                     FACTORS AFFECTING
                     REHABILITATION?
                     Low economic status impedes participation in
Schopp, Johnstone,   urgent or long-term care following TBI. Twenty-
  and Reid-Arndt     five percent of rural employees earn less than
      (2005)         minimum wage and lives below the poverty line,
                     compared to sixteen percent of employees in
                     urban areas.
Limited access to intervention is a marked
                    barrier for proper recovery. Facilities and
                    trained practitioners are limited, notably for
                    financial reasons. Physicians and therapists are
   Johnstone,       not attracted to working in rural areas because
Nossaman, Schopp,   they may spend up to 16% more time in the
 Holmquist, and     office and have 38% more patients than
 Rupright (2002)
                    clinicians in urban areas and this does not
                    correlate with higher earnings, unfortunately.
                    Medical care is usually covered by Medicare or
                    Medicaid programs, which reimburse at a much
                    lower rate than private insurance companies.
                    Essentially, practitioners in rural areas work
                    harder than those in the city but earn less for it.


                    An advantage toward recovery is community
                    support. The traditionally close-knit
   Johnstone,       environment of rural areas corresponds with
Nossaman, Schopp,   stronger emotional and psychological health
 Holmquist, and     following injury. As well, the slower pace in
 Rupright (2002)    those regions reduces risk of physiological or
                    mental stress on the patient, advancing
                    recovery.


WHAT ARE YOUR SUGGESTED RECOMMENDATIONS AND
RESOURCES AND WHY DID YOU SELECT THEM?
   Mainly, the options available to patients in rural areas are located
   in urban settings. This requires long-distance travel that can be
   time-consuming and expensive, so patients have to turn to local,
   less-skilled practitioners or not receive care. Community-based
   programs for injury prevention and telehealth systems have been
   shown to be useful for rural healthcare.
WHAT SYSTEMS ARE INVOLVED IN
                     THE CARE, REHABILITATION OF THIS
                     GROUP?
                     When available, urgent and long-term care
                     provided by specialty physicians,
                     nurses/physician assistants, occupational
                     therapists, physical therapists, speech-language
                     pathologists, neuropsychologists, rehabilitation
    Johnstone,       specialists, counselors, psychiatrists and social
 Nossaman, Schopp,   workers contributes to care of TBI patients. As
  Holmquist, and     well, community services, such as
  Rupright (2002)    transportation for the disabled, state disability
                     programs and TBI support groups, are useful
                     resources. Typically, care systems of this
                     magnitude are more common to urban areas, so
                     patient travel is required. Commonly, regular
                     care must be provided through a rural general
                     practitioner and community supports occur in a
                     less structured form, as the help of family and
                     neighbors.


                     WHAT ARE SOME APPROPRIATE
                     INTERVENTIONS/APPROACHES THAT
                     LEAD TO POSITIVE OUTCOMES?
                     Telehealth technology (telecommunication
                     within a health and rehabilitation system) has
                     been of focus, providing persons with TBI in
                     rural areas long-distance connections to care.
                     Evaluation interviews for rehabilitation
Schopp, Johnstone,   recommendations can be performed in spite of
and Merrell (2000)
                     geographical obstacles, relieving obligations to
spend time and money on travel to regional
                     urban facilities. It has been indicated that
                     patients preferred long-distance contact from a
                     clinician for these reasons, and that this
                     technology also allows for communication with
                     needed psychologists and rehabilitation
                     programs funded by the state.


                     Telecommunication technology is also being
                     encouraged for training purposes, allowing
                     physicians local to rural areas with a suitable
Schopp, Johnstone,
                     background in diagnosing and treating TBI.
  and Merveille
     (2000)          Such telehealth training programs have already
                     been implemented so members of rural
                     populations can receive appropriate care from
                     practitioners local to their areas.


                     Preventative measures against brain injury are
                     being undertaken within communities.
 Stallones, Gibbs-   Community-wide prevention programs promote
Long, Gabella, and   regular health maintenance and safety
 Kakefuda (2008)
                     guidelines to build resilience against injury. The
                     more support from the community, the more
                     effective these initiatives.

                     Improved statewide trauma care systems have
                     been installed to reduce post-injury deaths due
                     to sparseness of resources. For example, Iowa
                     instated a Trauma System Development Act in
                     1995 to enact a statewide trauma care system;
                     the program went into full effect in 2001. The
Tiesman et al.,
    (2007)        system included a hospital classification system
                  (Level 1/State or Level 2/Regional), provided
                  Advanced Trauma Life Support training and
                  determined a triage protocol. Level 1 and 2
                  hospitals were required to have coverage for
                  TBI, including neurosurgery. Tracking data
                  revealed that the Trauma System successfully
                  transported injured patients to Level I and II
                  hospitals as needed, resulting in a significant
                  decrease in risk of death within the first 72
                  hours following injury and in the long term.
                  Also, diagnostic accuracy and treatment
                  recommendations for TBI cases improved
                  significantly.


                  WHAT RESOURCES ARE AVAILABLE
                  FOR ADDITIONAL INFORMATION
                  AND/OR SUPPORT, SPECIFIC TO A
                  GEOGRAPHIC AREA?
                  Because support for community health and
                  safety initiatives can vary according to culture,
                  it is important to assess the readiness of a
                  community before implementing such programs.
                  It is possible that issues receiving widespread
                  attention at the federal or state level are not
                  considered important in the household because
                  local issues or perspectives take priority. This is
                  especially the case in rural counties. Colorado
                  State University developed a Community
                  Readiness Model and accompanying evaluation
                  system to lay the groundwork for community-
                  based programs. Through Community
Stallones, Gibbs-
Long, Gabella, and
 Kakefuda (2008)
                     Readiness Interviews (semi-structured, open-
                     ended questionnaires), the model takes into
                     account individual attitudes toward readiness
                     (e.g. awareness of the problem at hand,
                     dedication to care within their households) and
                     community commitment (e.g. steps taken within
                     local healthcare systems, leadership
                     involvement). These assessments have proven to
                     provide more information about community
                     perspectives than typical statewide data
                     acquired through medical, insurance and
                     government databases and surveys. The
                     Community Readiness Model and Interviews
                     have been shown to help communities
                     implement change, including in the area of
                     injury prevention. Such a tool would be useful
                     for starting programs in communities
                     elsewhere. For more information,
                     http://triethniccenter.colostate.edu/communityR
                     eadiness_home.htm


                     The National Institute on Disability and
                     Rehabilitation Research has developed a model
                     for telehealth training programs. Trial runs of
                     the program have been implemented in the
                     Midwest to evaluate its efficacy in providing
                     treatment to rural residents with brain injuries.
                     Simply, the design involves two to three online
                     training sessions that last 1 to 2 hours. Lessons
                     are facilitated by a board-certified
                     neuropsychologist at an urban facility and a
                     general practitioner with experience treating
Schopp, Johnstone,
                     rural patients. In addition to medical
  and Reid-Arndt     interventions, the training highlighted family
      (2005)         involvement in patient care and TBI resources
                     at the state and community levels (e.g. state
                     TBI service coordinators, vocational
                     rehabilitation counselors, the state Brain Injury
                     Association, and TBI support groups). Ratings
                     following these trial runs indicated that trained
                     practitioners improved significantly between
                     pre- and post-tests on TBI. Also, patient surveys
                     were compared between those who had received
                     care from trainees and those who did not;
                     patients of trainees reported higher confidence
                     in their physicians and greater satisfaction and
                     guidance. Among these benefits, telehealth has
                     also been considered efficient, customizable,
                     convenient, as interactive as a classroom
                     setting, more engaging than self-education via
                     lectures or reading, requiring only limited
                     technological awareness, and less expensive
                     than a traditional training setting.


                     Residents of Iowa, Minnesota and Wisconsin
                     can refer to the National Institute for Disability
                     and Rehabilitation Research (NIDRR)/Midwest
                     Advocacy Project (MAP) website to participate
                     in advocacy research
                     http://mayoresearch.mayo.edu/mayo/research/tb
                     ims/midwest.cfm
Resources and contacts by state are available
                  through Brainline.org: preventing, treating and
                  living with traumatic brain injury (TBI)
                  http://www.brainline.org/resources/site_map.ph
                  p


                  News regarding research into using
                  telecommunication networks to facilitate
                  TBI treatment in rural areas is available
                  through the Mayo Clinic website
                  http://www.mayoclinic.org/news2012-
                  rst/7151.html



WHAT AUDIENCE WAS THIS PRODUCT DESIGNED FOR?
   This product was designed for advocate organizations for TBI,
   medical and psychological training programs, families and
   patients. This information is beneficial not only for understanding
   limitations in resources for TBI care but also to draw attention to
   these deficits, for the sake of improvement. This information can
   be taken to legislators to install regulations and supports such as
   those in Iowa. Training programs can look into telehealth
   education to generate more practitioners capable of assisting rural
   patients.


WHY WAS THE FORMAT FOR THE PRODUCT CHOSEN?
   The product was placed in a quick guide format to be easily
   distributed within hospitals, from advocacy groups and for other
   interested parties. It should be a quick and easy read, with not too
   many words and just enough information to make readers aware of
   the situation. Placing only key information that stands out should
   pique interest, and if anyone wants more information, they can
   refer to the webpage.
HOW WAS THE PRODUCT DEVELOPED?
   Data related to the topic was compiled in full for the guide, then,
   the most salient and interesting points were placed into the quick
   guide for fast reading. A note is present at the bottom of the guide
   referring readers to the website if they desire more information.

PRODUCT PREVIEW
   The quick guide can be accessed at the following website:
   http://www.slideshare.net/RuralTBIData/a-quick-guide-to-tbi-in-
   rural-america-15321364. Simply go to the link and scroll down the
   slideshow. The quick guide can also be downloaded and printed
   through this setup.




LIMITATIONS TO USING THE PRODUCT
   The only caution for readers is to acknowledge that the information
   and research on rural populations does not account for all
   situations and just provides an overall picture. As well, data for
   individual states can suggest potential scenarios for similar regions
   but does not actually indicate sameness between the areas.
REFERENCES
1. Coben, J. H., Tiesman, H. M., Bossarte, R. M., &
   Furbee, P. M. (2009). Rural-urban differences in
   injury hospitalizations in the U.S.,
   2004.American Journal of Preventive
   Medicine, 36(1), 49-55.
2. Johnstone, B., Nossaman, L. D., Schopp, L. H.,
   Holmquist, L., & Rupright, S. J. (2002).
   Distribution of services and supports for people
   with traumatic brain injury in rural and urban
   Missouri. The Journal of Rural Health, 18(1),
   109-117.
3. Schootman, M., & Fuortes, L. (1999). Functional
   status following traumatic brain injuries:
   Population-based rural-urban differences. Brain
   Injury: [BI], 13(12), 995-1004.
4. Schopp, L. H., Johnstone, B. J., & Merrell, D.
   (2000). Telehealth and neuropsychological
   assessment: New opportunities for
   psychologists. Professional Psychology:
   Research and Practice, 31, 179-183.
5. Schopp, L. H., Johnstone, B., & Merveille, O. C.
   (2000). Multidimensional telehealth care
   strategies for rural residents with brain injury.
   Journal of Telemedicine and Telecare, 6 (Suppl.
   l), 146–149.
6. Schopp, L. H., Johnstone, B., & Reid-Arndt, S.
   (2005). Telehealth brain injury training for
   rural behavioral health generalists: Supporting
and enhancing rural service delivery
  networks. Professional Psychology: Research
  and Practice, 36(2), 158-163.
7. Stallones, L., Gibbs-Long, J., Gabella, B., &
   Kakefuda, I. (2008). Community readiness and
   prevention of traumatic brain injury. Brain
   Injury, 22(7-8), 555-564.
8. Tiesman, H. M., Konda, S., & Bell, J. L. (2011).
   The epidemiology of fatal occupational
   traumatic brain injury in the U.S. American
   Journal of Preventive Medicine, 41(1), 61-67.
9. Tiesman, H., Young, T., Torner, J. C.,
   McMahon, M., Peek-Asa, C., & Fiedler, J.
   (2007). Effects of a rural trauma system on
   traumatic brain injuries. Journal of
   Neurotrauma, 24(7), 1189-1197.

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TBI and Related Resources in Rural America

  • 1. :: TBI and Resources in Rural America A Supplement to the “Quick Guide” Census data in the last decade indicates that over 60 million people, or approximately 21% of Americans, live in rural areas. Schopp, Johnstone, and Reid-Arndt (2005) People in rural areas have been found to be more likely to have difficulty obtaining medical and psychological resources than members of urban societies. Over half of counties in the U.S. do not have psychologists, social workers, or psychiatrists and over 70% of shortages in federal mental health services are found in rural areas. WHY IS THIS PRODUCT IMPORTANT (THE PROBLEM OF ABI IN THIS POPULATION, CURRENT GAPS, AND THE PURPOSE OF THE PRODUCT)? As seen below, it is evident that rural areas experience deficits in treatment resources, including those for TBI. The related product sheds light on these concerns and offers ideas for change. Practices within rural communities and urban-centered options are proposed.
  • 2. THE SCOPE OF THE PROBLEM Traumatic brain injury (TBI) itself has 1.5 to 2 Johnstone, million sufferers a year, nationally. The cost for Nossaman, Schopp, TBI treatment ranges from $9 to $10 billion for Holmquist, and Rupright (2002) emergency and rehabilitative care, however, persons with TBI in rural areas tend to have the most difficulty a receiving such treatment. Among Americans ages one to fifty-three, accidental injury is a leading cause of death. Typically, members of rural populations incur an atypically high number of such fatal injuries. As a rule of thumb, accident rates increase the Coben, Tiesman, more rural (sparse) the area. For injuries that Bossarte, and can result in TBI, rural areas attribute their Furbee (2009) fatal accidents to motor vehicle incidents, falls and poisonings, unlike urban areas, whose high accident rates align with assaults. Per capita, hospital costs for accidental injuries are highest for rural areas. The high rate of injury in these regions has drawn attention to needed prevention and intervention programs there. Stallones, Gibbs- In Colorado, for example, incidence of TBI is Long, Gabella, and Kakefuda (2008) higher in rural counties than in urban counties, and, in Iowa, vehicular accidents and falls have Schootman and a higher incident rate in rural counties. Fuortes (1999)
  • 3. Traumatic brain injuries that result in death often occur in the workplace. Following construction workers, employees in the Tiesman, Konda, agriculture, forestry, and fishing industries are and Bell (2011) most likely to incur fatal TBIs. A call for care has been made for members of these groups, likely to reside in rural areas, seeking preventative measures on these work sites. WHAT ARE THE COMMON SHORT AND LONG TERM DIFFICULTIES THAT THIS GROUP MAY EXPERIENCE? Trauma care systems exist in the US for the sake of transporting injured persons to the most accessible facility providing services for a Tiesman et al. designated injury. Unfortunately, greatest (2007) accessibility is in urban areas. In rural areas, travel is less efficient (longer, farther) between patient retrieval and appropriate facilities. Because immediate care of TBI contributes to a more positive prognosis, speedy hospital arrival is key. In the long-term, delays in urgent care can contribute to patient death following TBI. In rural areas, such as regions of Missouri, where a third of the population lives outside of metropolitan areas, a common obstacle to care for TBI is a lack of resources. Necessary practitioners for care, such as Johnstone, neuropsychologists and rehabilitation Nossaman, Schopp, psychologists with training in brain injury, are Holmquist, and Rupright (2002)
  • 4. not accessible. Fewer rehabilitation sites, psychologists, physiatrists, and support groups are found in rural areas than in cities. Less than a fifth of a state’s licensed practitioners may be found in a rural region. Typically, clients have to receive urgent care in an urban setting then return to the city for ongoing treatment, see a general practitioner in their rural community or terminate care altogether. As of a year to year-and-a-half following TBI, survivors in rural areas are more likely to be dependent on others and less advanced in Schootman and recovery than those in urban areas. Reasons for Fuortes (1999) this difference include cause of injury, care immediately following injury, long-term/rehab care, and community supports. Notably, quality and quantity of care is notably different between urban and rural populations. Specifically, in Iowa, a structured trauma care system is not available. WHAT ARE RISK AND PROTECTIVE FACTORS AFFECTING REHABILITATION? Low economic status impedes participation in Schopp, Johnstone, urgent or long-term care following TBI. Twenty- and Reid-Arndt five percent of rural employees earn less than (2005) minimum wage and lives below the poverty line, compared to sixteen percent of employees in urban areas.
  • 5. Limited access to intervention is a marked barrier for proper recovery. Facilities and trained practitioners are limited, notably for financial reasons. Physicians and therapists are Johnstone, not attracted to working in rural areas because Nossaman, Schopp, they may spend up to 16% more time in the Holmquist, and office and have 38% more patients than Rupright (2002) clinicians in urban areas and this does not correlate with higher earnings, unfortunately. Medical care is usually covered by Medicare or Medicaid programs, which reimburse at a much lower rate than private insurance companies. Essentially, practitioners in rural areas work harder than those in the city but earn less for it. An advantage toward recovery is community support. The traditionally close-knit Johnstone, environment of rural areas corresponds with Nossaman, Schopp, stronger emotional and psychological health Holmquist, and following injury. As well, the slower pace in Rupright (2002) those regions reduces risk of physiological or mental stress on the patient, advancing recovery. WHAT ARE YOUR SUGGESTED RECOMMENDATIONS AND RESOURCES AND WHY DID YOU SELECT THEM? Mainly, the options available to patients in rural areas are located in urban settings. This requires long-distance travel that can be time-consuming and expensive, so patients have to turn to local, less-skilled practitioners or not receive care. Community-based programs for injury prevention and telehealth systems have been shown to be useful for rural healthcare.
  • 6. WHAT SYSTEMS ARE INVOLVED IN THE CARE, REHABILITATION OF THIS GROUP? When available, urgent and long-term care provided by specialty physicians, nurses/physician assistants, occupational therapists, physical therapists, speech-language pathologists, neuropsychologists, rehabilitation Johnstone, specialists, counselors, psychiatrists and social Nossaman, Schopp, workers contributes to care of TBI patients. As Holmquist, and well, community services, such as Rupright (2002) transportation for the disabled, state disability programs and TBI support groups, are useful resources. Typically, care systems of this magnitude are more common to urban areas, so patient travel is required. Commonly, regular care must be provided through a rural general practitioner and community supports occur in a less structured form, as the help of family and neighbors. WHAT ARE SOME APPROPRIATE INTERVENTIONS/APPROACHES THAT LEAD TO POSITIVE OUTCOMES? Telehealth technology (telecommunication within a health and rehabilitation system) has been of focus, providing persons with TBI in rural areas long-distance connections to care. Evaluation interviews for rehabilitation Schopp, Johnstone, recommendations can be performed in spite of and Merrell (2000) geographical obstacles, relieving obligations to
  • 7. spend time and money on travel to regional urban facilities. It has been indicated that patients preferred long-distance contact from a clinician for these reasons, and that this technology also allows for communication with needed psychologists and rehabilitation programs funded by the state. Telecommunication technology is also being encouraged for training purposes, allowing physicians local to rural areas with a suitable Schopp, Johnstone, background in diagnosing and treating TBI. and Merveille (2000) Such telehealth training programs have already been implemented so members of rural populations can receive appropriate care from practitioners local to their areas. Preventative measures against brain injury are being undertaken within communities. Stallones, Gibbs- Community-wide prevention programs promote Long, Gabella, and regular health maintenance and safety Kakefuda (2008) guidelines to build resilience against injury. The more support from the community, the more effective these initiatives. Improved statewide trauma care systems have been installed to reduce post-injury deaths due to sparseness of resources. For example, Iowa instated a Trauma System Development Act in 1995 to enact a statewide trauma care system; the program went into full effect in 2001. The
  • 8. Tiesman et al., (2007) system included a hospital classification system (Level 1/State or Level 2/Regional), provided Advanced Trauma Life Support training and determined a triage protocol. Level 1 and 2 hospitals were required to have coverage for TBI, including neurosurgery. Tracking data revealed that the Trauma System successfully transported injured patients to Level I and II hospitals as needed, resulting in a significant decrease in risk of death within the first 72 hours following injury and in the long term. Also, diagnostic accuracy and treatment recommendations for TBI cases improved significantly. WHAT RESOURCES ARE AVAILABLE FOR ADDITIONAL INFORMATION AND/OR SUPPORT, SPECIFIC TO A GEOGRAPHIC AREA? Because support for community health and safety initiatives can vary according to culture, it is important to assess the readiness of a community before implementing such programs. It is possible that issues receiving widespread attention at the federal or state level are not considered important in the household because local issues or perspectives take priority. This is especially the case in rural counties. Colorado State University developed a Community Readiness Model and accompanying evaluation system to lay the groundwork for community- based programs. Through Community
  • 9. Stallones, Gibbs- Long, Gabella, and Kakefuda (2008) Readiness Interviews (semi-structured, open- ended questionnaires), the model takes into account individual attitudes toward readiness (e.g. awareness of the problem at hand, dedication to care within their households) and community commitment (e.g. steps taken within local healthcare systems, leadership involvement). These assessments have proven to provide more information about community perspectives than typical statewide data acquired through medical, insurance and government databases and surveys. The Community Readiness Model and Interviews have been shown to help communities implement change, including in the area of injury prevention. Such a tool would be useful for starting programs in communities elsewhere. For more information, http://triethniccenter.colostate.edu/communityR eadiness_home.htm The National Institute on Disability and Rehabilitation Research has developed a model for telehealth training programs. Trial runs of the program have been implemented in the Midwest to evaluate its efficacy in providing treatment to rural residents with brain injuries. Simply, the design involves two to three online training sessions that last 1 to 2 hours. Lessons are facilitated by a board-certified neuropsychologist at an urban facility and a general practitioner with experience treating
  • 10. Schopp, Johnstone, rural patients. In addition to medical and Reid-Arndt interventions, the training highlighted family (2005) involvement in patient care and TBI resources at the state and community levels (e.g. state TBI service coordinators, vocational rehabilitation counselors, the state Brain Injury Association, and TBI support groups). Ratings following these trial runs indicated that trained practitioners improved significantly between pre- and post-tests on TBI. Also, patient surveys were compared between those who had received care from trainees and those who did not; patients of trainees reported higher confidence in their physicians and greater satisfaction and guidance. Among these benefits, telehealth has also been considered efficient, customizable, convenient, as interactive as a classroom setting, more engaging than self-education via lectures or reading, requiring only limited technological awareness, and less expensive than a traditional training setting. Residents of Iowa, Minnesota and Wisconsin can refer to the National Institute for Disability and Rehabilitation Research (NIDRR)/Midwest Advocacy Project (MAP) website to participate in advocacy research http://mayoresearch.mayo.edu/mayo/research/tb ims/midwest.cfm
  • 11. Resources and contacts by state are available through Brainline.org: preventing, treating and living with traumatic brain injury (TBI) http://www.brainline.org/resources/site_map.ph p News regarding research into using telecommunication networks to facilitate TBI treatment in rural areas is available through the Mayo Clinic website http://www.mayoclinic.org/news2012- rst/7151.html WHAT AUDIENCE WAS THIS PRODUCT DESIGNED FOR? This product was designed for advocate organizations for TBI, medical and psychological training programs, families and patients. This information is beneficial not only for understanding limitations in resources for TBI care but also to draw attention to these deficits, for the sake of improvement. This information can be taken to legislators to install regulations and supports such as those in Iowa. Training programs can look into telehealth education to generate more practitioners capable of assisting rural patients. WHY WAS THE FORMAT FOR THE PRODUCT CHOSEN? The product was placed in a quick guide format to be easily distributed within hospitals, from advocacy groups and for other interested parties. It should be a quick and easy read, with not too many words and just enough information to make readers aware of the situation. Placing only key information that stands out should pique interest, and if anyone wants more information, they can refer to the webpage.
  • 12. HOW WAS THE PRODUCT DEVELOPED? Data related to the topic was compiled in full for the guide, then, the most salient and interesting points were placed into the quick guide for fast reading. A note is present at the bottom of the guide referring readers to the website if they desire more information. PRODUCT PREVIEW The quick guide can be accessed at the following website: http://www.slideshare.net/RuralTBIData/a-quick-guide-to-tbi-in- rural-america-15321364. Simply go to the link and scroll down the slideshow. The quick guide can also be downloaded and printed through this setup. LIMITATIONS TO USING THE PRODUCT The only caution for readers is to acknowledge that the information and research on rural populations does not account for all situations and just provides an overall picture. As well, data for individual states can suggest potential scenarios for similar regions but does not actually indicate sameness between the areas.
  • 13. REFERENCES 1. Coben, J. H., Tiesman, H. M., Bossarte, R. M., & Furbee, P. M. (2009). Rural-urban differences in injury hospitalizations in the U.S., 2004.American Journal of Preventive Medicine, 36(1), 49-55. 2. Johnstone, B., Nossaman, L. D., Schopp, L. H., Holmquist, L., & Rupright, S. J. (2002). Distribution of services and supports for people with traumatic brain injury in rural and urban Missouri. The Journal of Rural Health, 18(1), 109-117. 3. Schootman, M., & Fuortes, L. (1999). Functional status following traumatic brain injuries: Population-based rural-urban differences. Brain Injury: [BI], 13(12), 995-1004. 4. Schopp, L. H., Johnstone, B. J., & Merrell, D. (2000). Telehealth and neuropsychological assessment: New opportunities for psychologists. Professional Psychology: Research and Practice, 31, 179-183. 5. Schopp, L. H., Johnstone, B., & Merveille, O. C. (2000). Multidimensional telehealth care strategies for rural residents with brain injury. Journal of Telemedicine and Telecare, 6 (Suppl. l), 146–149. 6. Schopp, L. H., Johnstone, B., & Reid-Arndt, S. (2005). Telehealth brain injury training for rural behavioral health generalists: Supporting
  • 14. and enhancing rural service delivery networks. Professional Psychology: Research and Practice, 36(2), 158-163. 7. Stallones, L., Gibbs-Long, J., Gabella, B., & Kakefuda, I. (2008). Community readiness and prevention of traumatic brain injury. Brain Injury, 22(7-8), 555-564. 8. Tiesman, H. M., Konda, S., & Bell, J. L. (2011). The epidemiology of fatal occupational traumatic brain injury in the U.S. American Journal of Preventive Medicine, 41(1), 61-67. 9. Tiesman, H., Young, T., Torner, J. C., McMahon, M., Peek-Asa, C., & Fiedler, J. (2007). Effects of a rural trauma system on traumatic brain injuries. Journal of Neurotrauma, 24(7), 1189-1197.