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Kent conference presentation (claire edwards & etaoine howlett, ucc)
1. The new professionals?‘ADHD parents’ and the evaluation of alternative therapeutic regimes Claire Edwards & Etaoine Howlett, School of Applied Social Studies, University College Cork
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3. The context: children with ADHD and the search for alternative therapeutic strategies
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5. Why do parents engage in the process of knowledge production?
6. What relationships do parents form with professionals in the process of producing evidence?
30. Parents sought to reconfigure the nature of the therapeutic regime underpinning treatment of ADHD
31. Expand the treatment options available beyond the “very strongly biological, medical model” encountered by parents – more holistic approach preferred“..assessment, diagnosis and intervention by using a primarily medical model is not the full picture. You need to have other components in place…[The group weren’t] demeaning the medical intervention. They were saying that it’s Step 1 and, in their experience, all the other steps were missing.”(Interview with evaluator)
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34. Parental choice in the context of a scarcity of service provision (Valentine, 2010)
35. Parental choice – reduced to “market-orientated empowerment” (Grob & Schlessinger, 2011) “..I thought ‘Well, we’d better investigate this’…it was a private clinician that was doing it…and I was curious because I felt like he was selling a lot…and I thought ‘Well, if parents are spending so much money then let’s find out if it really good and worth it’..” Interview with parents’ support group co-ordinator
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37. Intervening in the conceptualisation and shaping of ADHD as condition through funding particular lines of research
38. Creation of a “network assemblage…help weave together networks of patients, funding sources, clinicians and potential researchers”(Hess, 2004) Differing levels of engagement and collaboration with the research process – more than research initiators? Ongoing relationship with epistemic partners
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41. Strategic engagement with the concept of evidence and importance of evaluation in creation of particular forms of knowledge