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Directions for ICT Research in Disease Prevention




 FP7-ICT-2009.5.1 – Support Action




                     User profiling and segmentation:
                   Personalizing interventions for healthy
                                  behavior
                     Anita Honka, Kirsikka Kaipainen
                     VTT Technical Research Center of Finland
                     pHealth 2010, Berlin
                     Session 11: ICT research directions for disease prevention


                               This project is partially funded under the 7th Framework Programme by the European Commission
Health behavior matters

• Poor lifestyle choices
  increasingly are the largest
  contributors to common
  adverse health outcomes

• WHO: 77% of the disease                            Non-Modifiable Contributors to Disease
                                                     Lifestyle Contributors to Disease
  burden in Europe is
  accounted for by disorders               Hu et al. Diet, lifestyle and the risk of type 2 Diabetes in women.
                                           NEJM 2001 Sep 13;345(11):790-7.
                                           Stampfer MJ, Hu FB, Manson JE, Rimm EB, Willett WC. Primary
  related to lifestyles                    prevention of coronary heart disease in women through diet and
                                           lifestyle. N Engl J Med. 2000; 343: 16–22



                           Life style risk factors
      Diet                 Alcohol consumption                       Sleep
      Physical activity    Smoking                                   Stress

                          www.preve-eu.org
Lifestyle change - a challenge

• Education and knowledge are required
   – not everyone is aware of their health risks and how to live
     healthily

• Lifestyle change is difficult
   – often requires people to change their familiar habits and give up
     their preferred ways of living

• Motivation is the main challenge
   – how to motivate people to take preventive actions against
     diseases that might occur in the distant future




                     www.preve-eu.org
Need for assistance and support

In order to empower the citizen to adopt a healthy lifestyle

1. Profile the person and his environment  personal
   profile
   –   Identify health risk factors,
   –   sources of motivation and
   –   difficulties and barriers that discourage / prevent behavior
       change

2. Provide personalized guidance for behavioral change




                     www.preve-eu.org
PROFILING THE PERSON – FACTORS THAT
INFLUENCE BEHAVIOR



                www.preve-eu.org
Determinants of health behavior

  Values, personality
                  Social                          Ability
                  influences



                                                             Reasoned
Awareness         Self-efficacy       Intention
                                                             behavior



                  Outcome
                  expectations                    Barriers



                                                             Automatic
                                                             behaviors

Environmental contexts


                         www.preve-eu.org
Motivators / Incentives

• emerge from personal
  values which are
  relatively stable

• guide intentions by
  defining the perceived
  value for expected
  outcomes

• fulfill our needs and are
  considered as benefits

                              Motivational value types by Schwarz
                   www.preve-eu.org
Environmental context

• influences our choices                      Public policy
  through
   – the availability of products,
                                               Community
     services and facilities that
     support / discourage healthy
     behaviors
   – ways choices are presented             Organizational
     i.e. the choice architecture
   – social norms and public
                                              Interpersonal
     regulations

• is built by actors from                       Individual

  multiple levels
                                        Influences on different levels

                     www.preve-eu.org
Life stages and trigger events


Motivators




Resources



Trigger
events

             Childhood   Adolescence    Adulthood   Old age



                          www.preve-eu.org
Example Persona, diet & exercise
                       1. Basic information                     10. Outcome expectations                                2. Values, personality
                     Oscar, 28 years, Finnish.          I could get into shape, make my wife            Hedonism: seeks for pleasure and enjoyment, lives
                     Lives with her wife, no            happy and possibly live longer,                 in the moment, hates planning, somewhat worried
                     children.                          BUT it’s not worth the effort:                  of his looks.
                     Education: vocational.             Too complicated to plan and cook food           Benevolence: helpful and generous, pleased to
                     Occupation: carpenter.             everyday, exercising is hard and makes          make people happy.
                                                        me feel nauseous. Watching TV is much           Self-direction: practical type, wants to create with
            8. Social influences                        more fun.                                       his hands.
     Discouraging. Friends have bad                     Attitude: Better to live a short life of        Interests: hunting and motor vehicles
     habits, too. Eat out together and                  enjoyment than a long life with                 Motivators: enjoyment, appreciation, practicality,
     watch sports from TV. Wife tries                   restrictions.                                   uncomplicatedness, body shape, interests
     to push him to change his
     habits, which he considers as
     nagging.                                                                               4. Current health behavior                 5. Risk factors
                                                                                            Poor. Eats irregularly. Often         Family history of
          12. External resources                                                            enjoys sugary and fatty foods.        hypertension, bad
Fair. Good exercise facilities near, but                                                    Gets some physical activity at        working ergonomics,
variety of sports lacking. Healthy food                                                     work, but that’s about it.            slight overweight
varieties available, but unhealthy
products even more. Sufficient time for                                                   9. Self-efficacy                       7. Awareness
leisure. Money is not a problem.                                                      Strong. Is confident         Fair. Is aware of his unhealthy habits,
                                                                                      of his capability to         but is not concerned of the future.
              11. Abilities                                                           change behavior.             Discounts the value of health. Thinks
Poor. Low knowledge literacy, draws                                                                                that in any case the quality of life will
conclusions based on the experiences                                                13. Channels, services         deteriorate significantly after turning 50.
of few people only. Does not have                                       Information sources he considers eligible:
                                                 6. Intention
enough patience to follow very                                          internet discussion forums, friends, parents,        3. Quality of life / Health status
                                             Weak. Has thought
complex information. Suffers from a                                     siblings and professionals.                      Generally good. Occasional back pain
                                             about changing his
panic disorder, which is triggered by                                   Media: TV, hunting, weapon and motorcycle        due to bad working ergonomics. Poor
                                             habits, but is not
hard physical effort. Low self-control:                                 magazines.                                       fitness: recognizes this when lifting
                                             ready to take action.
hard to resist temptations.                                             Services: restaurants, movie rentals, hunting    heavy things at work, gets rather easily
                                                                        club.                                            exhausted during hunting trips.
                                                               www.preve-eu.org
Interventions for Oscar 1/2
    Aim: strengthen the weak intention / motivation for healthy diet &
    regular exercise
Problem to target          Methods to use
Awareness:                 Education on the long-term health benefits of healthy lifestyle. Pointing out
lack of knowledge, poor    reliable health information sources.
knowledge literacy         Methods: Images as analogies, Tailoring information
                           Co-creator: health care
Awareness:                 Information about personal risk: musculoskeletal problems in the near future,
biased risk assessment,    cardiovascular disease, diabetes.
discounting the value of   Imaginary time-shifting with loss-frame: plausible future scenarios of his body
health                     shape and quality of life.
                           Contacts with older people who had similar thoughts and habits when younger
                           and their experiences on aging.
                           Co-creators: health care, Facebook
Social influences:         Health education targeted to friends, parents and siblings.
habit for unhealthy        Making friends’ health expectations and attitudes visible.
social activities          Mobilizing social support: engaging everyone in a common health promotion plan.
                           Wife to have an encouraging attitude instead of complaining, show special
                           appreciation when her husband cooks.
                           Co-creators: health care, psychologists, exercise facility providers, community


                                      www.preve-eu.org
Interventions for Oscar 2/2
Problem to target Methods to use
Outcome                  Arguments for positive images that motivate e.g. good-looking and fit
expectations:            motorcyclist, hunting without getting exhausted, energy to apply at work.
disadvantages exceed     Providing short-term benefits for healthy behavior e.g. seasonal hunting limit
advantages               health behavior dependent, encouragement to use creativity in cooking.
                         Co-creators: psychologists, hunting club, restaurants, grocery shops, work place
Abilities:               Guided practise: training for preparing healthy, but easy meals.
complicated to plan      Practical tips to help planning, pre-planned cooking and eating schedule.
and prepare meals        Co-creators: nutritionists, restaurants, grocery shops
Abilities:               Learning coping strategies. Treatment for the disorder. Support in finding
panic disorder           appropriate exercise options that do not trigger the condition.
                         Co-creators: health care, psychologies
Abilities:               Practical tips: e.g. do not storage sugary and fatty foods at home, go shopping
weak self-control to     when hungry, or keep TV open in the background. Make a shopping list before
resist temptations       entering the shop.
                         Co-creators: health care, psychologists
External resources:      Modifying availability and choice architecture: Unhealthy foods out of direct
unhealthy food readily   sight in shops, less in variety. Less fast food places. Increased availability of
available                healthy products.
                         Co-creators: grocery shops, community, government, restaurants

                                 www.preve-eu.org
Personal profile
                                                                      Ability
                               Profiling variables
                                                                                 Reasoned
                                                          Intention
        - Current health behaviors and risk factors                              behavior

        - Degree of intention towards healthy behaviors
        - Motivators derived from values and interests
                                                                      Barriers
        - Resources

                        Resources (barriers & abilities)

                                                External resources
                Internal resources
                                               Social environment
               Psychological abilities
                                              Service environment
                 Physical abilities
                                              Physical environment
             Determinants of intention
                                           Channels and services used
                Habits and routines
                                           Time & Monetary resources
Dynamicity


                             www.preve-eu.org
IMPLICATIONS FOR INTERVENTIONS



              www.preve-eu.org
Main principles

• Primary aims:
   – Create or strengthen intention
   – Increase abilities and remove barriers

• Consider the environmental contexts of the person
   – Remove barriers and create facilitators
   – Guide people with appropriate choice architectures
   – Offer immediate, tangible benefits for healthy behaviors
   Make changes on multiple levels through involving different actors
    Identify co-creators of health and involve them in delivering
     interventions (business models)

• Take advantage of trigger events in people’s lives


                     www.preve-eu.org
High-level intervention logic




     www.preve-eu.org
Targeting vs. tailoring

• Targeting: designing interventions for subgroups with
  common characteristics
   – Segmentation dimensions: health behavior, motivators and
     resources
   – Benefits: reach many individuals, fairly affordable
   – Challenge: to provide interventions personalized enough

• Tailoring: fitting an intervention to meet the personal
  needs and characteristics of a person rather than a group
   – The most effective approach, but traditionally costly

• Persuasive technologies as a way of delivering guidance
  for individuals
   – affordable, accessible, personalized

                     www.preve-eu.org
Concluding Vision:
       ICT enabled personalized interventions
• A Do-It-Yourself platform for profiling yourself and to
  select interventions that match your profile
   – Enables tailored interventions

• ICT could faciliate the execution of interventions
   – Bring the co-creators, meaningful interpersonal relations and the
     citizen together
   – Provide personal guidance e.g. suggestions for healthy options,
     reminders, practical tips, feedback
   – Context awareness




                     www.preve-eu.org
PREVE partners

Valtion teknillinen tutkimuskeskus, VTT

Aarhus University

Fondazione Centro San Raffaele del
  Monte Tabor

Universidad Politécnica de Valencia



    www.preve-eu.org
Appendix: Investigated theories by their
                  focus areas
Individual behavior and behavior change   Specific behavioral determinants
Theories of individual behavior           •   Theories of social networks and social
• Social Cognitive Theory (SCT)               support
• Health Belief Model (HBM)               •   Prototype Willingness Model (PWM)
• Theory of Reasoned Action (TRA)         •   Self-determination Theory (SDT)
• Theory of Planned Behavior (TPB)        •   Protection Motivation Theory (PMT)
• Integrated Change Model (ICM)           •   Goal-setting theories
                                          •   Attribution theory
Theories of stages of behavior change
• Transtheoretical Model (TTM)            Communication
• Precaution Adoption Process Model
    (PAPM)                                • Elaboration Likelihood Model (ELM)
• Health Action Process Approach (HAPA) • Diffusion of Innovations Theory (DIT)
                                          • Persuasion-Communication Matrix (PCM)
Frameworks of behavioral theories
• Social marketing framework              Applications of theories
• Behavioral economics
                                          • Psychological therapies
                                          • Persuasive technologies
Theories of automatic behavior and habits
                                          Life stages and profiling
Learning theories
                                          • Developmental theories

                           www.preve-eu.org

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pHealth - User profiling and segmentation

  • 1. Directions for ICT Research in Disease Prevention FP7-ICT-2009.5.1 – Support Action User profiling and segmentation: Personalizing interventions for healthy behavior Anita Honka, Kirsikka Kaipainen VTT Technical Research Center of Finland pHealth 2010, Berlin Session 11: ICT research directions for disease prevention This project is partially funded under the 7th Framework Programme by the European Commission
  • 2. Health behavior matters • Poor lifestyle choices increasingly are the largest contributors to common adverse health outcomes • WHO: 77% of the disease Non-Modifiable Contributors to Disease Lifestyle Contributors to Disease burden in Europe is accounted for by disorders Hu et al. Diet, lifestyle and the risk of type 2 Diabetes in women. NEJM 2001 Sep 13;345(11):790-7. Stampfer MJ, Hu FB, Manson JE, Rimm EB, Willett WC. Primary related to lifestyles prevention of coronary heart disease in women through diet and lifestyle. N Engl J Med. 2000; 343: 16–22 Life style risk factors Diet Alcohol consumption Sleep Physical activity Smoking Stress www.preve-eu.org
  • 3. Lifestyle change - a challenge • Education and knowledge are required – not everyone is aware of their health risks and how to live healthily • Lifestyle change is difficult – often requires people to change their familiar habits and give up their preferred ways of living • Motivation is the main challenge – how to motivate people to take preventive actions against diseases that might occur in the distant future www.preve-eu.org
  • 4. Need for assistance and support In order to empower the citizen to adopt a healthy lifestyle 1. Profile the person and his environment  personal profile – Identify health risk factors, – sources of motivation and – difficulties and barriers that discourage / prevent behavior change 2. Provide personalized guidance for behavioral change www.preve-eu.org
  • 5. PROFILING THE PERSON – FACTORS THAT INFLUENCE BEHAVIOR www.preve-eu.org
  • 6. Determinants of health behavior Values, personality Social Ability influences Reasoned Awareness Self-efficacy Intention behavior Outcome expectations Barriers Automatic behaviors Environmental contexts www.preve-eu.org
  • 7. Motivators / Incentives • emerge from personal values which are relatively stable • guide intentions by defining the perceived value for expected outcomes • fulfill our needs and are considered as benefits Motivational value types by Schwarz www.preve-eu.org
  • 8. Environmental context • influences our choices Public policy through – the availability of products, Community services and facilities that support / discourage healthy behaviors – ways choices are presented Organizational i.e. the choice architecture – social norms and public Interpersonal regulations • is built by actors from Individual multiple levels Influences on different levels www.preve-eu.org
  • 9. Life stages and trigger events Motivators Resources Trigger events Childhood Adolescence Adulthood Old age www.preve-eu.org
  • 10. Example Persona, diet & exercise 1. Basic information 10. Outcome expectations 2. Values, personality Oscar, 28 years, Finnish. I could get into shape, make my wife Hedonism: seeks for pleasure and enjoyment, lives Lives with her wife, no happy and possibly live longer, in the moment, hates planning, somewhat worried children. BUT it’s not worth the effort: of his looks. Education: vocational. Too complicated to plan and cook food Benevolence: helpful and generous, pleased to Occupation: carpenter. everyday, exercising is hard and makes make people happy. me feel nauseous. Watching TV is much Self-direction: practical type, wants to create with 8. Social influences more fun. his hands. Discouraging. Friends have bad Attitude: Better to live a short life of Interests: hunting and motor vehicles habits, too. Eat out together and enjoyment than a long life with Motivators: enjoyment, appreciation, practicality, watch sports from TV. Wife tries restrictions. uncomplicatedness, body shape, interests to push him to change his habits, which he considers as nagging. 4. Current health behavior 5. Risk factors Poor. Eats irregularly. Often Family history of 12. External resources enjoys sugary and fatty foods. hypertension, bad Fair. Good exercise facilities near, but Gets some physical activity at working ergonomics, variety of sports lacking. Healthy food work, but that’s about it. slight overweight varieties available, but unhealthy products even more. Sufficient time for 9. Self-efficacy 7. Awareness leisure. Money is not a problem. Strong. Is confident Fair. Is aware of his unhealthy habits, of his capability to but is not concerned of the future. 11. Abilities change behavior. Discounts the value of health. Thinks Poor. Low knowledge literacy, draws that in any case the quality of life will conclusions based on the experiences 13. Channels, services deteriorate significantly after turning 50. of few people only. Does not have Information sources he considers eligible: 6. Intention enough patience to follow very internet discussion forums, friends, parents, 3. Quality of life / Health status Weak. Has thought complex information. Suffers from a siblings and professionals. Generally good. Occasional back pain about changing his panic disorder, which is triggered by Media: TV, hunting, weapon and motorcycle due to bad working ergonomics. Poor habits, but is not hard physical effort. Low self-control: magazines. fitness: recognizes this when lifting ready to take action. hard to resist temptations. Services: restaurants, movie rentals, hunting heavy things at work, gets rather easily club. exhausted during hunting trips. www.preve-eu.org
  • 11. Interventions for Oscar 1/2 Aim: strengthen the weak intention / motivation for healthy diet & regular exercise Problem to target Methods to use Awareness: Education on the long-term health benefits of healthy lifestyle. Pointing out lack of knowledge, poor reliable health information sources. knowledge literacy Methods: Images as analogies, Tailoring information Co-creator: health care Awareness: Information about personal risk: musculoskeletal problems in the near future, biased risk assessment, cardiovascular disease, diabetes. discounting the value of Imaginary time-shifting with loss-frame: plausible future scenarios of his body health shape and quality of life. Contacts with older people who had similar thoughts and habits when younger and their experiences on aging. Co-creators: health care, Facebook Social influences: Health education targeted to friends, parents and siblings. habit for unhealthy Making friends’ health expectations and attitudes visible. social activities Mobilizing social support: engaging everyone in a common health promotion plan. Wife to have an encouraging attitude instead of complaining, show special appreciation when her husband cooks. Co-creators: health care, psychologists, exercise facility providers, community www.preve-eu.org
  • 12. Interventions for Oscar 2/2 Problem to target Methods to use Outcome Arguments for positive images that motivate e.g. good-looking and fit expectations: motorcyclist, hunting without getting exhausted, energy to apply at work. disadvantages exceed Providing short-term benefits for healthy behavior e.g. seasonal hunting limit advantages health behavior dependent, encouragement to use creativity in cooking. Co-creators: psychologists, hunting club, restaurants, grocery shops, work place Abilities: Guided practise: training for preparing healthy, but easy meals. complicated to plan Practical tips to help planning, pre-planned cooking and eating schedule. and prepare meals Co-creators: nutritionists, restaurants, grocery shops Abilities: Learning coping strategies. Treatment for the disorder. Support in finding panic disorder appropriate exercise options that do not trigger the condition. Co-creators: health care, psychologies Abilities: Practical tips: e.g. do not storage sugary and fatty foods at home, go shopping weak self-control to when hungry, or keep TV open in the background. Make a shopping list before resist temptations entering the shop. Co-creators: health care, psychologists External resources: Modifying availability and choice architecture: Unhealthy foods out of direct unhealthy food readily sight in shops, less in variety. Less fast food places. Increased availability of available healthy products. Co-creators: grocery shops, community, government, restaurants www.preve-eu.org
  • 13. Personal profile Ability Profiling variables Reasoned Intention - Current health behaviors and risk factors behavior - Degree of intention towards healthy behaviors - Motivators derived from values and interests Barriers - Resources Resources (barriers & abilities) External resources Internal resources Social environment Psychological abilities Service environment Physical abilities Physical environment Determinants of intention Channels and services used Habits and routines Time & Monetary resources Dynamicity www.preve-eu.org
  • 14. IMPLICATIONS FOR INTERVENTIONS www.preve-eu.org
  • 15. Main principles • Primary aims: – Create or strengthen intention – Increase abilities and remove barriers • Consider the environmental contexts of the person – Remove barriers and create facilitators – Guide people with appropriate choice architectures – Offer immediate, tangible benefits for healthy behaviors Make changes on multiple levels through involving different actors  Identify co-creators of health and involve them in delivering interventions (business models) • Take advantage of trigger events in people’s lives www.preve-eu.org
  • 16. High-level intervention logic www.preve-eu.org
  • 17. Targeting vs. tailoring • Targeting: designing interventions for subgroups with common characteristics – Segmentation dimensions: health behavior, motivators and resources – Benefits: reach many individuals, fairly affordable – Challenge: to provide interventions personalized enough • Tailoring: fitting an intervention to meet the personal needs and characteristics of a person rather than a group – The most effective approach, but traditionally costly • Persuasive technologies as a way of delivering guidance for individuals – affordable, accessible, personalized www.preve-eu.org
  • 18. Concluding Vision: ICT enabled personalized interventions • A Do-It-Yourself platform for profiling yourself and to select interventions that match your profile – Enables tailored interventions • ICT could faciliate the execution of interventions – Bring the co-creators, meaningful interpersonal relations and the citizen together – Provide personal guidance e.g. suggestions for healthy options, reminders, practical tips, feedback – Context awareness www.preve-eu.org
  • 19. PREVE partners Valtion teknillinen tutkimuskeskus, VTT Aarhus University Fondazione Centro San Raffaele del Monte Tabor Universidad Politécnica de Valencia www.preve-eu.org
  • 20. Appendix: Investigated theories by their focus areas Individual behavior and behavior change Specific behavioral determinants Theories of individual behavior • Theories of social networks and social • Social Cognitive Theory (SCT) support • Health Belief Model (HBM) • Prototype Willingness Model (PWM) • Theory of Reasoned Action (TRA) • Self-determination Theory (SDT) • Theory of Planned Behavior (TPB) • Protection Motivation Theory (PMT) • Integrated Change Model (ICM) • Goal-setting theories • Attribution theory Theories of stages of behavior change • Transtheoretical Model (TTM) Communication • Precaution Adoption Process Model (PAPM) • Elaboration Likelihood Model (ELM) • Health Action Process Approach (HAPA) • Diffusion of Innovations Theory (DIT) • Persuasion-Communication Matrix (PCM) Frameworks of behavioral theories • Social marketing framework Applications of theories • Behavioral economics • Psychological therapies • Persuasive technologies Theories of automatic behavior and habits Life stages and profiling Learning theories • Developmental theories www.preve-eu.org