A talk I gave to the National Comitee of Vital & Health Statistics, a public advisory committee that advises HHS on data collection (and related topics). They were interested in finding out more about "non-traditional" data collection options, hence I have some details at the end about Health 2.0 sites that are moving in the research direction.

1. User-Generated Healthcare & its potential as a data source research vehicle NCVHS 26 February, 2009 Matthew Holt Founder/Author, The Health Care Blog Co-Founder, Health 2.0 [email_address]

2. Media sources people trust Source: Globescan/BBC/Reuters 2006

3. What the hell is Web 2.0?

8. What the hell is ? Are you still wondering?

10. Health 2.0: User-Generated Healthcare Search Social Networks Tools CONTENT TRANSACTION

11. Personalized search

12. Intelligent Communities

13. Intelligently presenting content

15. Search & Online Communities +

17. Health 2.0: User-Generated Healthcare Content Transaction Data Social Networks Tools Search

19. A continuum of Health 2.0? Use of Web2.0 technologies for patients and physicians to communicate and investigate without connecting to the health care system Tools and communities created as part of Web2.0 in health care, which then becoming connected to the system (i.e. creating appointments, conducting transactions, managing clinical events) Reforms in payment structures, transparency, and technology produce changes in delivery structure and process around chronic care treatment, excellence centers for particular procedures, etc. All the data collected in a combination of a, b & c produces leaps ahead in the process of care and eventually in drug and procedure discovery. User-generated health care Users connect to providers Partnerships to reform delivery Data drives discovery

20. The Present and Potential of Health2.0 Ultimate Impact Likelihood Data drives discovery User-Generated Healthcare Users connect to Providers Partnerships to reform delivery

21. Data/Research: Patients’ opinions

22. Data/Research: Doctors’ opinions

23. Communities as Research Vehicles

24. A Health 2.0 trial?

25. A Health 2.0 trial?

26. A Health 2.0 trial?

27. Individual & Crowd Data

28. Delving into the long tail: CureTogether

29. Understanding the whole “integrated” patient

30. Communities as Research Vehicles