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Unleashing the Power of Data, IT, and
    Innovation to Improve Health

      Todd Park, Chief Technology Officer
U.S. Department of Health and Human Services
                 @todd_park
There has never been a better time to be an
innovator at the intersection of health, data, & IT


                    New Incentives


                           +
                 Information Liberation


                           =
               Rocket Fuel for Innovation
New incentives, part 1: “Meaningful Use”


                           Stage 3

           Stage 2


 Stage 1
                        Medicare/Medicaid incentive
                        payments rewarding “meaningful use”
                        of EHRs (not purchase of EHRs alone)
                         • Physicians: $44,000/$63,750
                         • Hospitals: $2M plus bonuses for higher
                           Medicare, Medicaid volume
                         • Escalating requirements – Stages 1, 2, 3
                         • Over 150,000 providers have registered to
                           participate thus far
New incentives, part 2: The Affordable Care
Act and payment reform

 •True transformation of the health care system depends on
  changing how we pay for care

 •The Affordable Care Act will drive a shift from “pay for volume
  of services” toward “pay for health and value”

 •Law launches an array of key payment reform programs + a
  game-changer: the Center for Medicare and Medicaid
  Innovation
Payment reforms will motivate and reward
innovation at a whole new level

   Patient       • Organized outpatient care,
  Centered         coordination and team-based             IT Innovations Needed:
Medical Homes      approaches
                                                           Timely Clinical Data,
 Accountable     • Shared savings; redesigned care         Decision Support
     Care          processes for high quality, efficient
 Organizations     delivery                                Care Integration Tools

                 • Pilot program for episodes of care;     Technology to Extend
   Bundled         incentivizes reduced costs around       Physician Reach
  Payments         eight conditions
                                                           Consumer Engagement
 Readmission     • Motivates hospitals to engage with      Tools/Platforms/Apps
  Reduction        care coordinators and better
  Programs         organize delivery systems               Data Mining/Analytics
Information liberation, part 1: rising patient
data liquidity
                   The Direct Project

                                  • Collaborative, open project to
                                    develop a simple method for
                                    enabling secure transmission of
                                    health information via the Internet

                                  • Launched 3/10, specs posted 6/10,
                                    first “secure health care email”
                                    production transaction 1/11

                                  • Now being implemented by 65+
                                    vendors representing over 95% of
                                    the EHR base of the US, key
                                    consumer platforms, etc.

                                  • Go to directproject.org to learn
                                    more
Information liberation, part 1: rising patient
data liquidity (continued)
                    “Blue Button”    • The ability for any veteran,
                                       Medicare beneficiary, or
                                       military beneficiary to
                                       download an electronic copy
                                       of their own personal health
                                       or claims information

                                     • Launched 10/10, utilized by
                                       over 500,000 unique users
                                       thus far

                                     • Also being adopted by
                                       Aetna, United Health,
                                       Walgreens, RelayHealth,
                                       Vermont, etc.

                                     • Go to bluebuttondata.org to
                                       learn more
Information liberation, part 1: rising patient
data liquidity (continued)

             Improved Patient Access to Lab Data

• New proposed CLIA rule announced by HHS 9/2011

• Would give patients the right to get their own test results
  directly from the labs that generate them
Information liberation, part 2: increasing
market transparency
                               HealthCare.gov




• Key early requirement of the
  Affordable Care Act
• First website to compile
  comprehensive inventory of           • Insurance pricing and benefits info
  private and public health              added 10/10
  coverage options across the U.S.     • Significantly enhanced clinical
  for consumers                          provider quality information on the
• Initial version deployed 7/10          way
Information liberation, part 3 -- the Health Data
Initiative (HDI): turning HHS and our sister
agencies into the “NOAA of health data”



       Weather data
                                       • Weather newscasts
                                       • Weather websites
                               FUELS   • Weather mobile apps
                                       • Weather insurance
                                       • And more
Made available to the public
Health Data Initiative core activities: liberate
data and catalyze innovation


1. Publish brand new HHS data for public access – while rigorously
   protecting privacy and confidentiality

2. Make existing HHS data much more accessible -- “machine-
   readable,” accessible via application programming interfaces
   (APIs), free, much easier to find

3. Energetically publicize our data to innovators -- who can use it
   as raw material to develop applications and services that help
   improve health and health care
What kinds of data are we liberating?


                Community
                  Health
                                           Community Health
   Govt
                              Provider     Data Example:
                             Directories
 Spending
                             & Quality
                 HHS                       • Health Indicators
              Data Being                     Warehouse, at
                                             healthindicators.gov
              Liberated
                                           • 1,170 metrics of
 Medical/
                               “Blue         community health
 Scientific
                              Button”        and health care
Knowledge
                                             performance
                Consumer                   • Launched 2/2011
                 Product
               Information
What kinds of data are we liberating?


                Community                  Provider Directories &
                  Health                   Quality Data Examples:

                              Provider
   Govt
                             Directories   • Nationwide
 Spending
                             & Quality       directories of care
                 HHS                         providers
              Data Being                   • Provider quality
              Liberated                      COMPARE APIs at
                                             data.medicare.gov,
 Medical/
                               “Blue         launched 9/2010
 Scientific
                              Button”
Knowledge                                  • Medicare claim files
                                             for provider quality
                Consumer
                 Product
                                             measurement,
               Information                   launched 1/2012
What kinds of data are we liberating?


                Community
                  Health
                                           “Blue Button” Data

                              Provider
   Govt                                    • VA, HHS, DoD joint
                             Directories
 Spending                                    venture
                             & Quality
                 HHS                       • Allows veterans,
              Data Being                     Medicare
                                             beneficiaries, and
              Liberated
                                             active duty military
 Medical/                                    to download their
                               “Blue
 Scientific
                              Button”        own claims or
Knowledge
                                             personal health
                Consumer                     information
                 Product                   • Launched 10/2010
               Information
What kinds of data are we liberating?

                                           Consumer Product
                Community                  Information Examples:
                  Health


   Govt
                              Provider     • FDA recall (drugs,
                             Directories     devices, food) data in
 Spending
                             & Quality
                                             downloadable XML
                 HHS                         format --published
              Data Being                     10/2010
              Liberated                    • Health insurance
 Medical/                                    products available in
                               “Blue
 Scientific                                  the individual and
                              Button”
Knowledge                                    small business
                                             markets across the
                Consumer
                 Product
                                             U.S. – made available
               Information                   via downloadable
                                             files 8/2011
What kinds of data are we liberating?


                Community
                  Health
                                           Medical/Scientific
                              Provider
   Govt                                    Knowledge Examples:
                             Directories
 Spending
                             & Quality
                 HHS                       • National Library of
              Data Being                     Medicine API Portal,
              Liberated                      deployed 9/2010,
                                             including
 Medical/
                               “Blue         ClinicalTrials.gov and
 Scientific
                              Button”        Pillbox APIs
Knowledge
                                           • Medline Plus
                Consumer                     Connect, launched
                 Product
               Information                   11/2010
What kinds of data are we liberating?


                Community
                  Health
                                           Govt Spending Data
                              Provider     Example:
   Govt
                             Directories
 Spending
                             & Quality
                 HHS                       • Medicare claims
                                             “basic standalone
              Data Being
                                             files” – first-ever
              Liberated                      claim-level files
 Medical/                                    (“slimmed” for
                               “Blue
 Scientific                                  privacy protection),
                              Button”
Knowledge
                                             available for free
                Consumer
                                             public download for
                 Product                     all major types of
               Information                   care as of 5/2011
HealthData.gov, the one-stop place to get all of
our free, publicly available data, launched
2/2011
Publicizing our data to innovators across
America

• Challenges and “code-a-thons” (health2challenge.org)
• Many innovator “meetups” and conferences
• Annual “health datapaloozas”
The June 9, 2011 Health Data Initiative Forum

•   2nd annual “health datapalooza” --
    sponsored by the Institute of Medicine
    and HHS

•   Showcased 50 of the best innovations
    developed by companies that help
    consumers, care providers, employers,
    and communities improve health and
    health care

•   Featured major announcements by
    nearly 20 additional companies and
    other organizations
Examples: helping consumers take control of
    their health and health care


•   iTriage

•   Healthline

•   Vitals.com

•   Patients Like Me

•   Asthmapolis

•   Food Oasis
Examples: helping care providers deliver
better care (and succeed as accountable
delivery systems)

•   Aetna

•   Essence Group/Lumeris

•   Doximity

•   Press Ganey

•   Rise Health

•   ElizaLIVE
Examples: helping communities improve
    health

•    Ozioma

•    ESRI

•    Network of Care for
     Healthy Communities

•    Palantir/CDC
Selected announcements at the Forum

•   Walgreens “Health Guides” + challenge
•   Aetna Foundation challenge
•   Sanofi Aventis diabetes challenge
•   NCIIA Nursing Home of the Future
    “invent-a-thon”
•   University of Michigan: nation’s first
    consumer health informatics masters
    degree program
•   Startup Health: new health startup
    “seed accelerator/entrepreneurship
    academy”
•   New “Health Data Consortium”
Founding members of the Health Data
    Consortium
•    Academy Health
•    California HealthCare Foundation
•    Consumers Union
•    ESRI
•    Gallup-Healthways Well-Being Index
•    Grantmakers in Health
•    Health 2.0
•    InnoCentive
•    Institute of Medicine
•    Lucile Packard Foundation for Children’s Health
•    Mayo Clinic Center for Innovation
•    National Association of Counties
•    O’Reilly Media
•    Robert Wood Johnson Foundation
•    U.S. Department of Health and Human Services
HDI goal: a self-propelled, open “ecosystem of
innovation” using data to improve health (and
create jobs of the future)
                                   A Rapidly Growing Array of Innovative
                                        Products and Services That:
                                    • Help consumers take control of
Health-Related Data from              their health and health care
                                    • Help employers promote health
                                      and wellness
                           FUELS    • Help care providers deliver better
                                      care
                                    • Help journalists shed light
                                    • Help local leaders make better-
                                      informed decisions
                                    • Support all of the above through
                                      “data intermediary” services
                                    • And much more
A historic moment and opportunity!


                New Incentives


                       +
             Information Liberation


                       =
      Rocket Fuel for Innovation & Progress

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Unleashing Health Data Innovation

  • 1. Unleashing the Power of Data, IT, and Innovation to Improve Health Todd Park, Chief Technology Officer U.S. Department of Health and Human Services @todd_park
  • 2. There has never been a better time to be an innovator at the intersection of health, data, & IT New Incentives + Information Liberation = Rocket Fuel for Innovation
  • 3. New incentives, part 1: “Meaningful Use” Stage 3 Stage 2 Stage 1 Medicare/Medicaid incentive payments rewarding “meaningful use” of EHRs (not purchase of EHRs alone) • Physicians: $44,000/$63,750 • Hospitals: $2M plus bonuses for higher Medicare, Medicaid volume • Escalating requirements – Stages 1, 2, 3 • Over 150,000 providers have registered to participate thus far
  • 4. New incentives, part 2: The Affordable Care Act and payment reform •True transformation of the health care system depends on changing how we pay for care •The Affordable Care Act will drive a shift from “pay for volume of services” toward “pay for health and value” •Law launches an array of key payment reform programs + a game-changer: the Center for Medicare and Medicaid Innovation
  • 5. Payment reforms will motivate and reward innovation at a whole new level Patient • Organized outpatient care, Centered coordination and team-based IT Innovations Needed: Medical Homes approaches Timely Clinical Data, Accountable • Shared savings; redesigned care Decision Support Care processes for high quality, efficient Organizations delivery Care Integration Tools • Pilot program for episodes of care; Technology to Extend Bundled incentivizes reduced costs around Physician Reach Payments eight conditions Consumer Engagement Readmission • Motivates hospitals to engage with Tools/Platforms/Apps Reduction care coordinators and better Programs organize delivery systems Data Mining/Analytics
  • 6. Information liberation, part 1: rising patient data liquidity The Direct Project • Collaborative, open project to develop a simple method for enabling secure transmission of health information via the Internet • Launched 3/10, specs posted 6/10, first “secure health care email” production transaction 1/11 • Now being implemented by 65+ vendors representing over 95% of the EHR base of the US, key consumer platforms, etc. • Go to directproject.org to learn more
  • 7. Information liberation, part 1: rising patient data liquidity (continued) “Blue Button” • The ability for any veteran, Medicare beneficiary, or military beneficiary to download an electronic copy of their own personal health or claims information • Launched 10/10, utilized by over 500,000 unique users thus far • Also being adopted by Aetna, United Health, Walgreens, RelayHealth, Vermont, etc. • Go to bluebuttondata.org to learn more
  • 8. Information liberation, part 1: rising patient data liquidity (continued) Improved Patient Access to Lab Data • New proposed CLIA rule announced by HHS 9/2011 • Would give patients the right to get their own test results directly from the labs that generate them
  • 9. Information liberation, part 2: increasing market transparency HealthCare.gov • Key early requirement of the Affordable Care Act • First website to compile comprehensive inventory of • Insurance pricing and benefits info private and public health added 10/10 coverage options across the U.S. • Significantly enhanced clinical for consumers provider quality information on the • Initial version deployed 7/10 way
  • 10. Information liberation, part 3 -- the Health Data Initiative (HDI): turning HHS and our sister agencies into the “NOAA of health data” Weather data • Weather newscasts • Weather websites FUELS • Weather mobile apps • Weather insurance • And more Made available to the public
  • 11. Health Data Initiative core activities: liberate data and catalyze innovation 1. Publish brand new HHS data for public access – while rigorously protecting privacy and confidentiality 2. Make existing HHS data much more accessible -- “machine- readable,” accessible via application programming interfaces (APIs), free, much easier to find 3. Energetically publicize our data to innovators -- who can use it as raw material to develop applications and services that help improve health and health care
  • 12. What kinds of data are we liberating? Community Health Community Health Govt Provider Data Example: Directories Spending & Quality HHS • Health Indicators Data Being Warehouse, at healthindicators.gov Liberated • 1,170 metrics of Medical/ “Blue community health Scientific Button” and health care Knowledge performance Consumer • Launched 2/2011 Product Information
  • 13. What kinds of data are we liberating? Community Provider Directories & Health Quality Data Examples: Provider Govt Directories • Nationwide Spending & Quality directories of care HHS providers Data Being • Provider quality Liberated COMPARE APIs at data.medicare.gov, Medical/ “Blue launched 9/2010 Scientific Button” Knowledge • Medicare claim files for provider quality Consumer Product measurement, Information launched 1/2012
  • 14. What kinds of data are we liberating? Community Health “Blue Button” Data Provider Govt • VA, HHS, DoD joint Directories Spending venture & Quality HHS • Allows veterans, Data Being Medicare beneficiaries, and Liberated active duty military Medical/ to download their “Blue Scientific Button” own claims or Knowledge personal health Consumer information Product • Launched 10/2010 Information
  • 15. What kinds of data are we liberating? Consumer Product Community Information Examples: Health Govt Provider • FDA recall (drugs, Directories devices, food) data in Spending & Quality downloadable XML HHS format --published Data Being 10/2010 Liberated • Health insurance Medical/ products available in “Blue Scientific the individual and Button” Knowledge small business markets across the Consumer Product U.S. – made available Information via downloadable files 8/2011
  • 16. What kinds of data are we liberating? Community Health Medical/Scientific Provider Govt Knowledge Examples: Directories Spending & Quality HHS • National Library of Data Being Medicine API Portal, Liberated deployed 9/2010, including Medical/ “Blue ClinicalTrials.gov and Scientific Button” Pillbox APIs Knowledge • Medline Plus Consumer Connect, launched Product Information 11/2010
  • 17. What kinds of data are we liberating? Community Health Govt Spending Data Provider Example: Govt Directories Spending & Quality HHS • Medicare claims “basic standalone Data Being files” – first-ever Liberated claim-level files Medical/ (“slimmed” for “Blue Scientific privacy protection), Button” Knowledge available for free Consumer public download for Product all major types of Information care as of 5/2011
  • 18. HealthData.gov, the one-stop place to get all of our free, publicly available data, launched 2/2011
  • 19. Publicizing our data to innovators across America • Challenges and “code-a-thons” (health2challenge.org) • Many innovator “meetups” and conferences • Annual “health datapaloozas”
  • 20. The June 9, 2011 Health Data Initiative Forum • 2nd annual “health datapalooza” -- sponsored by the Institute of Medicine and HHS • Showcased 50 of the best innovations developed by companies that help consumers, care providers, employers, and communities improve health and health care • Featured major announcements by nearly 20 additional companies and other organizations
  • 21. Examples: helping consumers take control of their health and health care • iTriage • Healthline • Vitals.com • Patients Like Me • Asthmapolis • Food Oasis
  • 22. Examples: helping care providers deliver better care (and succeed as accountable delivery systems) • Aetna • Essence Group/Lumeris • Doximity • Press Ganey • Rise Health • ElizaLIVE
  • 23. Examples: helping communities improve health • Ozioma • ESRI • Network of Care for Healthy Communities • Palantir/CDC
  • 24. Selected announcements at the Forum • Walgreens “Health Guides” + challenge • Aetna Foundation challenge • Sanofi Aventis diabetes challenge • NCIIA Nursing Home of the Future “invent-a-thon” • University of Michigan: nation’s first consumer health informatics masters degree program • Startup Health: new health startup “seed accelerator/entrepreneurship academy” • New “Health Data Consortium”
  • 25. Founding members of the Health Data Consortium • Academy Health • California HealthCare Foundation • Consumers Union • ESRI • Gallup-Healthways Well-Being Index • Grantmakers in Health • Health 2.0 • InnoCentive • Institute of Medicine • Lucile Packard Foundation for Children’s Health • Mayo Clinic Center for Innovation • National Association of Counties • O’Reilly Media • Robert Wood Johnson Foundation • U.S. Department of Health and Human Services
  • 26. HDI goal: a self-propelled, open “ecosystem of innovation” using data to improve health (and create jobs of the future) A Rapidly Growing Array of Innovative Products and Services That: • Help consumers take control of Health-Related Data from their health and health care • Help employers promote health and wellness FUELS • Help care providers deliver better care • Help journalists shed light • Help local leaders make better- informed decisions • Support all of the above through “data intermediary” services • And much more
  • 27. A historic moment and opportunity! New Incentives + Information Liberation = Rocket Fuel for Innovation & Progress