Graeme Osborne, Jo Fitzpatrick Health Information Strategy Action Committee www.hisac.govt.nz (2/10/09, Forum, 7.45)

1. Safe Sharing of Health Information Health Information Strategy Advisory Committee Graeme Osborne and Jo Fitzpatrick

8. Answers 1 2 3 4 R

9. Answers 1 2 3 4 R

10. Answers 1 2 3 4 R

11. Answers 1 2 3 4 R

12. Answers 1 2 3 4 R

23. Answers 1 2 3 4 R Consumers need to manage who has access and what for and be educated into implications of not sharing 7 21 24 2 Consumers should know who has seen their record and have the ability to mark items as confidential 5 11 33 5 Where written in conjunction with consumer and agreed, their health information should be in their control completely and to the extent that they know who is looking at their notes and what they are doing with the information and can correct errors Consumers should have supported access 0 3 46 15 Consumer should have easy access to their own information 0 0 10 44

24. Answers 1 2 3 4 R Consumers should be able to see who accessed their information Full informed control (with realism) General control but with limitations and exceptions Should have control but there will be circumstances where that will be over-ridden Consumers should have the right to consent to what information is released. Consent should be timebound and refreshed Treating clinicians require complete access to information – if that requires “break glass” model so be it

25. Answers 1 2 3 4 R Consumers should have control over what medical knowledge is used to augment their health record e.g. latest treatment information eg latest treatment information for diabetes on-line forums for chronic diseases Consumers cannot change records but can add to their own View all including child protection alerts Control should be at the consumers choice based on a contract with primary care provider and other care professionals