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Workshop 6 - "Case study: Italian Training for MDs,"

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EURORDIS - Rare Diseases Europe
EURORDIS - Rare Diseases Europe

UNIAMO FIMR is an Italian association committed to improving the quality of life of people with rare diseases. It represents over 95 member organizations and 600 rare diseases. The "Knowing to Assist" project provided training on rare diseases to Italian doctors to improve diagnosis and care coordination for patients. A pilot course trained 45 general practitioners and pediatricians who then trained other doctors in their regions.

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“ KNOWING TO ASSIST” ItalianTraining for MDs Renza Barbon Galluppi UNIAMO FIMR Amsterdam 13-14 May
UNIAMO Italian Federation of Rare Diseases ,[object Object],[object Object],[object Object]
RD Associations’skills ,[object Object],[object Object],[object Object]
Public Health Priorities ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
Awareness and projects ,[object Object],[object Object],[object Object],[object Object],[object Object]
Needs and project ,[object Object],[object Object],[object Object],[object Object],[object Object]
The care is the set of actions that allow, in every period of life, modulation and implementation of social and health interventions The care takes into account the individuality of the person, activities and relationships that give significance to his daily life Legge 328/00 - art. 14
First step of the project ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Knowing to assist ,[object Object],[object Object],[object Object],[object Object]
RDD Feb. 29,2009 ,[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
Pilot Course ,[object Object],[object Object],[object Object]
Pilot Course ,[object Object],[object Object]
www.malatirari.it ,[object Object],[object Object],[object Object]
2010-2011 Program ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Metodology of development ,[object Object],[object Object],[object Object],[object Object],[object Object]
Goals ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Focus groups ,[object Object],[object Object]
First outcomes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
First outcomes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
First outcomes ,[object Object],[object Object],[object Object]
THANK YOU FOR YOUR ATTENTION UNIAMO FIMR www.uniamo.org
[object Object],[object Object],Ente con personalità giuridica Iscrizione n. 102 Del Registro nazionale A.P.S. Associazioni di Promozione Sociale Fondata a Roma il 3 luglio 1999 www.uniamo.org Affiliata al CnAMC di CITTADINANZATTIVA La FEDERAZIONE ITALIANA delle associazioni di pazienti affetti da patologie rare da sempre impegnata nella tutela dei diritti e nel miglioramento della qualità della vita del paziente e della sua famiglia Associazioni federate

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Workshop 6 - "Case study: Italian Training for MDs,"

  • 1. “ KNOWING TO ASSIST” ItalianTraining for MDs Renza Barbon Galluppi UNIAMO FIMR Amsterdam 13-14 May
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  • 8. The care is the set of actions that allow, in every period of life, modulation and implementation of social and health interventions The care takes into account the individuality of the person, activities and relationships that give significance to his daily life Legge 328/00 - art. 14
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  • 23. THANK YOU FOR YOUR ATTENTION UNIAMO FIMR www.uniamo.org
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