I know that the European Union defines it as less than 5 per 10,000 I have brought with me some information folders translated to English which you can get from me. Rarelink is a link collection for rare diseases. This site is a useful source for highly qualified information aimed at both patients and experts.
Read some of the results from my papers
When it comes to PWS most babies get diagnosed at the hospital very soon after birth. I Norway we also are very lucky because we have a very strong and active PWS Association. The PWS Association and Frambu have close collaboration. The PWS-association is a very good model which some of the other rare diagnostics groups in Norway can learn from. Networking is extremely important for rare diseases.
When it comes to PWS most babies get diagnosed at the hospital very soon after birth. I Norway we also are very lucky because we have a very strong and active PWS Association. The PWS Association and Frambu have close collaboration. The PWS-association is a very good model which some of the other rare diagnostics groups in Norway can learn from. Networking is extremely important for rare diseases.