The document discusses a membership meeting held by Eurordis in Amsterdam from May 13-15, 2011. It focuses on providing specialized social services for rare disease patients and integrating rare diseases into social policies. A key topic is the future Joint Action on Rare Diseases, which will address social challenges through a working package on specialized social services. Findings from EurordisCare studies show rare disease families have a high social and economic burden, experiencing lower income, stopping work, and relocating. National conferences highlighted the need to support specialized services and develop national plans or strategies for rare diseases.

1. www.eurordis.org Amsterdam 13-15 May Provision of specialised social services and integration of RD into social policies and services Eurordis membership meeting Amsterdam, 13-15 May 2011 Dorica Dan – pres e d i nt e RPWA/ RONARDBoD EURORDIS, IPWSO EUCERD member