Presentation about Ukrainian Patients Organization "Stop Hepatitis". What we doing, what we planing...

1. UKRAINIAN PUBLIC ORGANIZATIONSTOP HEPATITIS Chairwomen Olga Gavrilova

2. Association of people, that have hepatitis B or C, people who represent the patients with HV; Audience of UPO: citizens of Ukraine, patients with chronic viral hepatitis, medical public; Founders live and fights with hepatitis C, members of organization – with chronic hepatitis B and C; Date of registration in Ministry of Justice: 20 October 2009 year; Main Office: Bohomoltsa str.4 office 504, Kiev, 01024, Ukraine Regional representatives – 14 regional's, 60 activists. About Organization

3. Collaboration with World Hepatitis Alliance (WHA) The entrance of UPO “Stop hepatitis” in WHA will be considered on international convention in June of 2010. Collaboration with European Liver Patients Association (ELPA) The entrance of UPO “Stop hepatitis” in ELPA will be considered on international convention in April of 2010. About Organization

4. Primary Goals of UPO “Stop hepatitis” Full realization of the rights and legal interests of patients with HV; Improvement the quality of life of people with HV; Making hepatitis the key priority of the healthcare policy of Ukraine; Getting citizens to participate in public life in Ukraine.

5. Assisting with implementation of state programs aimed at preventing hepatitis The law department of Ministry of Healthcare of Ukraine considers Memorandum (agreement) between Ministry of Healthcare and UPO “Stop hepatitis” in relation to combining effort on development and realization Government Program; We entered and became members of the “work group”, which got organized in the Ministry of Healthcare of Ukraine, that will be helping to solve the problem of HV in Ukraine; We had meetings with the Ministry of Healthcare of Ukraine and the Committee of Supply, on which we presented the suggestion paper about selection money on treatment for patients with hepatitis. Our suggestion will be plugged in consideration for acceptance the budget of Ukraine 2010. Negotiations are conducted with social partners Mission of UPO “Stop hepatitis”

6. Bringing in people to UPO: patients with HV, people that interested in helping to raise awareness about HV; Providing service of patients with hepatitis B and C; Providing of psychological support of patients; Informing patients about viral hepatitis's; Leadthrough such projects like- schools for the patients; Giving recommendations for patients about laboratories and clinics for the best diagnostics and treatment of hepatitis; Lobbying interests of patient (in regional's too). Mission of UPO “Stop hepatitis”

7. Development in regional's of Ukraine Legalization and activation regional representatives (working now on it); Selection and teaching of representatives of UPO in regions; Leadthrough of regional informative companies (the nearest 19.05.2010) Raising awareness of the public about viral hepatitis with the help of website www.hvstop.org Missionof UPO “Stop hepatitis”

8. Working in social networks, and also on forums, blogs and in the sections of comments of leading sites of medical and social and political subjects on a theme of viral hepatitis's; Lead through of Ukrainian sociological research on a theme «What do the people of Ukraine know about viral hepatitis B and C»; Preparation and leading through deserving measure in Ukraine on 19th of May round table with interested in organizations Informative company(Kiev and regional's) Future projects

9. Advancement of website http://hvstop.org/; Publishing a book “Living with hepatitis C for dummies” by Nina L Paul on Russian; Permanent working meetings with the representatives of Ministry of Healthcare of Ukraine. Future projects

10. 19.05.2009 – World Hepatitis Day Idea: Every 12th in the world infected by viral hepatitis B or C. Nevertheless, the majority of infected even don’t know about it. Purpose: to support the World Hepatitis Day, to pay attention on this problem in Ukraine. Realization: 19th of May on one of the central areas in Kiev volunteers gave away 10 000 of leaflets with information about HV. Realized projects

11. Realized projectsexample of a leaflet

12. Realized projects

14. about venereal diseases;

15. importance of donor;

16. preventive of hepatitis. All over Ukraine our representatives gave away about 40 thousand leaflets.

17. Realized projects

18. Realized projects example of a leaflet

19. Realized projects Participation on Ukrainian conference about the problems of hepatitis in Ukraine; Our chairwomen Gavrilova Olga made a report about presentation of our activity and future plans. Participation on International HCV Seminar: problems and prevalence, that was in Kyiv 01.10.09 On this seminar we met Nadine Piorkowsky, the President of The European Liver Patients Association, and Charles Gore. Participation in business training “Civil Society and bases of fundraising”; Participation in web-symposium that was organized by London medical school and company Viraled.

20. ContactOlga GavrilovaThe Head of UPO “Stop hepatits”Bohomoltsastr.4 office 504Kiev, 01024, Ukrainetel.: +38 044 256 25 80cell: +38 067 508 22 30e-mail: stop_hepatitis@ukr.netwebsite: www.hvstop.org