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Caregiving for
Alzheimer’s and
Dementia Patients

Presented by:

Tom Knox
November 20, 2013

CareFamily.com
What is Alzheimer’s?
Alzheimer's is a type of dementia that causes
problems with memory, thinking and
behavior. Symptoms usually develop slowly
and get worse over time, becoming severe
enough to interfere with daily tasks.

CareFamily.com
Understanding Changes in Behavior
• Aggression and Anger

• Suspicion and Delusions

• Anxiety and Agitation

• Sleep Issues and Sundowning

• Memory Loss and Confusion

• Repetition

• Depression

• Wandering and Getting Lost

• Hallucinations

CareFamily.com
Top Five Tips for Caregiving
1.

Try not to take behavior personally

2.

Remain patient and calm

3.

Explore pain as a trigger

4.

Don’t argue or try to convince

5.

Accept behaviors as a reality of the disease and
try to work through it

CareFamily.com
Care at All Stages of Alzheimer’s: Early-Stage
In the early stages of Alzheimer’s, a person may function independently.
• What to Expect
o Mild changes in the ability to think and learn
o Continues to participate in daily activities, and two-way dialogue
o Could last for years
• Some Good Activities
o Keep track of appointments
o Help in remembering words or names
o Help in recalling familiar places or people
o Keep track of medications
o Planning or organizing
CareFamily.com
Care at All Stages of Alzheimer’s: Middle-Stage
The middle stages of Alzheimer’s are typically the longest and can last for years
• What to Expect
o Difficult to express thoughts and perform routine tasks
o Could get frustrated or angry
o Could act in unexpected ways, such as refusing to bathe
• Some Good Activities
o Use calm voice when responding to repeated questions
o Respond to the emotion, instead of the specific question; the
person may simply need reassurance
o Use simple written reminders if the person can still read
o Be aware of changes – a physician should rule out physical
problems or medication side effects
CareFamily.com
Care at All Stages of Alzheimer’s: Late-Stage
The late stage of Alzheimer’s disease may last from several weeks to several years
• What to Expect
o Difficulty eating and swallowing
o Needs assistance walking and eventually is unable to walk
o Needs full-time help with personal care
o Vulnerable to infections, especially pneumonia
o Loses the ability to communicate with words
• Some Good Activities
o Play his or her favorite music
o Read portions of books that have meaning for the person
o Look at old photos
o Prepare a favorite food
o Rub lotion with a favorite scent into skin
o Brush the person’s hair
o Sit outside together on a nice day
Tips for Communicating with Alzheimer’s Patients
• Changes in Communication
o Using familiar words repeatedly
o Inventing new words to describe familiar objects
o Easily losing his or her train of thought
o Reverting back to a native language
o Having difficulty organizing words logically
o Speaking less often
• What You Can do to Help
o Be patient and supportive
o Offer comfort and reassurance
o Avoid criticizing and correcting
o Avoid arguing
o Offer a guess
o Encourage unspoken communication
o Limit distractions
o Focus on feelings, not facts
Excellent Resources
•

Alzheimer’s Association
o www.alz.org
o www.communityresourcefinder.org
o Offices / Chapters throughout the U.S.
o 24-Hour Helpline: 1-800-272-3900

•

Carefamily.com
o Info.CareFamily.com
o Videos, webinars, white papers and articles

•

Online education
o Alz.org
✓ E-learning workshops, training and
certification, books and DVDs
o CareFamily.com
✓ Free courses; certification
You can Find Courses at Carefamily.com

Easy access from the
Carefamily “Dashboard.”
Register today at:

www.carefamily.com
For full access
A Great Example of a FREE Course!

Great, Relevant
Course

Offerings to
Continue your
education
Our Story … Your Story
“ My beloved grandmother was neglected in
a facility. It inspired me to start an agency
that successfully hired and cared for
thousands of seniors at home. I have
realized that there are great caregivers who
want to build their careers at a livable wage.
Our goal is to provide you great career
options with the best families in America.”
- Tom Knox, Founder
Held by my great grandmother …
4 Generations of my family.
Visit us at:

www.CareFamily.com

CareFamily.com

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How to Care for Someone with Alzheimer's

  • 1. Caregiving for Alzheimer’s and Dementia Patients Presented by: Tom Knox November 20, 2013 CareFamily.com
  • 2. What is Alzheimer’s? Alzheimer's is a type of dementia that causes problems with memory, thinking and behavior. Symptoms usually develop slowly and get worse over time, becoming severe enough to interfere with daily tasks. CareFamily.com
  • 3. Understanding Changes in Behavior • Aggression and Anger • Suspicion and Delusions • Anxiety and Agitation • Sleep Issues and Sundowning • Memory Loss and Confusion • Repetition • Depression • Wandering and Getting Lost • Hallucinations CareFamily.com
  • 4. Top Five Tips for Caregiving 1. Try not to take behavior personally 2. Remain patient and calm 3. Explore pain as a trigger 4. Don’t argue or try to convince 5. Accept behaviors as a reality of the disease and try to work through it CareFamily.com
  • 5. Care at All Stages of Alzheimer’s: Early-Stage In the early stages of Alzheimer’s, a person may function independently. • What to Expect o Mild changes in the ability to think and learn o Continues to participate in daily activities, and two-way dialogue o Could last for years • Some Good Activities o Keep track of appointments o Help in remembering words or names o Help in recalling familiar places or people o Keep track of medications o Planning or organizing CareFamily.com
  • 6. Care at All Stages of Alzheimer’s: Middle-Stage The middle stages of Alzheimer’s are typically the longest and can last for years • What to Expect o Difficult to express thoughts and perform routine tasks o Could get frustrated or angry o Could act in unexpected ways, such as refusing to bathe • Some Good Activities o Use calm voice when responding to repeated questions o Respond to the emotion, instead of the specific question; the person may simply need reassurance o Use simple written reminders if the person can still read o Be aware of changes – a physician should rule out physical problems or medication side effects CareFamily.com
  • 7. Care at All Stages of Alzheimer’s: Late-Stage The late stage of Alzheimer’s disease may last from several weeks to several years • What to Expect o Difficulty eating and swallowing o Needs assistance walking and eventually is unable to walk o Needs full-time help with personal care o Vulnerable to infections, especially pneumonia o Loses the ability to communicate with words • Some Good Activities o Play his or her favorite music o Read portions of books that have meaning for the person o Look at old photos o Prepare a favorite food o Rub lotion with a favorite scent into skin o Brush the person’s hair o Sit outside together on a nice day
  • 8. Tips for Communicating with Alzheimer’s Patients • Changes in Communication o Using familiar words repeatedly o Inventing new words to describe familiar objects o Easily losing his or her train of thought o Reverting back to a native language o Having difficulty organizing words logically o Speaking less often • What You Can do to Help o Be patient and supportive o Offer comfort and reassurance o Avoid criticizing and correcting o Avoid arguing o Offer a guess o Encourage unspoken communication o Limit distractions o Focus on feelings, not facts
  • 9. Excellent Resources • Alzheimer’s Association o www.alz.org o www.communityresourcefinder.org o Offices / Chapters throughout the U.S. o 24-Hour Helpline: 1-800-272-3900 • Carefamily.com o Info.CareFamily.com o Videos, webinars, white papers and articles • Online education o Alz.org ✓ E-learning workshops, training and certification, books and DVDs o CareFamily.com ✓ Free courses; certification
  • 10. You can Find Courses at Carefamily.com Easy access from the Carefamily “Dashboard.” Register today at: www.carefamily.com For full access
  • 11. A Great Example of a FREE Course! Great, Relevant Course Offerings to Continue your education
  • 12. Our Story … Your Story “ My beloved grandmother was neglected in a facility. It inspired me to start an agency that successfully hired and cared for thousands of seniors at home. I have realized that there are great caregivers who want to build their careers at a livable wage. Our goal is to provide you great career options with the best families in America.” - Tom Knox, Founder Held by my great grandmother … 4 Generations of my family.