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Autism Treatment Network 
                     &
Autism Intervention Research – Physical Health 
                  Network
     Opportunities for Collaboration

        MCHB LEND Directors Spring Meeting
                March 6‐7, 2010
      __________________________________

             Corry Robinson, PhD, RN
         Presented by Eldon G. Schulz, MD
                  LEND Director
ATN Mission and Goals
• Improve access to comprehensive, multidisciplinary care for 
  children and youth with ASD
• Continuous quality improvement of clinical care
• Development, implementation, and dissemination of clinical 
  practice guidelines
• Conduct research to answer the questions parents bring to their 
  doctors
ATN Centers (14)
* Indicates proximity to DBP site


• Baylor College of Medicine
• Cincinnati Children’s Hospital*
• Columbia University*
• Kaiser Permanente Northern California*
• Kennedy‐Krieger Institute
• MGH/LADDERS/Lurie Center*
• Oregon Health & Science University
• Toronto Autism Network (Bloorview Kids Rehab, Surrey Place Centre and 
  the Hospital for Sick Children)
• University of Arkansas/Arkansas Children’s Hospital*
• University of Colorado/The Children’s Hospital
• University of Missouri
• University of Pittsburgh
• University of Rochester
• Vanderbilt University 
Autism Research
ATN in 2009 – Clinical Activities

• Over 1800 children enrolled in Registry
• ATN Centers provide care to over 5000 children and youth with ASD
• Education and training provided to more than 20 communities 
  through more than 65 presentations
• Piloting three clinical treatment algorithms to develop evidence‐
  based guidelines and improve quality of care
The Autism Intervention Research –
Physical Health Network (AIR‐P)
• Funded by Combating Autism Act Initiative (CAAI) through the 
  Health Resources and Services Administration (HRSA)
• Mission is to develop evidence based guidelines regarding diagnosis 
  and management of children with ASD
• Mission is to conduct research regarding autism treatments
• Mission is to conduct community outreach to increase awareness of 
  autism and the need for autism research
Opportunities for Collaboration

• ATN Centers are encouraged to develop collaborations 
  with other CAAI sponsored programs such as MCHB 
  LEND Training Programs and MCHB Developmental‐
  Behavioral Pediatrics Training Programs
• Collaboration may occur in any domain – research, 
  teaching, clinical care, etc.
• MCHB Developmental‐Behavioral Pediatrics Training 
  Programs have expressed strong interest in collaborative 
  research activities
Ongoing Opportunities for Collaboration
Collaboration is encouraged but not required – You have a choice!


• Mining existing ATN Registry data:
   – LEND Programs may submit ATN Data Analysis Request Form to 
     ATN Data Coordinating Center (DCC) & Clinical Coordinating 
     Center (CCC)
   – DCC provides data report and limited analytic support for 
     concept development 
   – LEND Programs may submit ATN Concept Development Form for 
     initial review by ATN CCC and ATN Scientific Review Committee

• Identify ATN Investigators with similar research interests
   – Connect with ATN sites/investigators to discuss opportunities 
     for collaboration on new/existing research activities
Ongoing Opportunities for Collaboration
Collaboration is encouraged but not required – You have a choice!


• Shared participation in conferences for the autism
  community – LEND faculty speak at AIR-P
  conferences and vice-versa
• AIR-P sites may provide alternative options for
  LEND clinical training
• Shared technical assistance activities
• Other??
Support Parameters

• ATN / AIR‐P is not able to provide funding for any LEND 
  projects
   – No allowable salary support for LEND faculty or trainees
   – No allowable mentorship support  


• Completed ATN/AIR‐P and LEND Program projects must 
  adhere to all ATN / AIR‐P policies regarding presentation 
  and publication
   – ATN Manual of Procedures will be available to LEND 
     investigators/mentors

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