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Dr. Lesley Farmer,
CSULB

Library Services
for Youth with ASD, Part 1:
Getting to know and interact
with youth who have ASD
Learning Objectives











Identify characteristics of youth with ASD.
Explain developmental issues of youth with ASD.
Identify challenges that youth with ASD may experience
when using the library.
Describe ways to make the library environment
comfortable for youth with ASD.
Describe inclusion strategies.
Discuss strategies for interacting successfully with youth
having ASD.
Describe effective social and behavior management
strategies to use with youth having ASD.
Is There an Issue?





1 in 90 children are born with autism
Tenfold increase in the last 40 years
Autism is now the second most common
serious developmental disability after mental
retardation/intellectual impairment (Centers for Disease
Control and Prevention, 2006)



Little curricular attention is paid to meet
needs of mainstreamed students (Iovannone, Dunlap, Huber
& Kincaid, 2003)



Few school libraries document any services
targeted to this population
Autism Spectrum Disorder (ASD)









5 developmental disorders: Autistic Disorder, Rett’s
Syndrome, Childhood Disintegrative Disorder,
Asperger Syndrome, and Pervasive Development
Disorder
Symptoms can range from mild to extreme
Children manifest symptoms of this group of
disorders either at birth (early infantile autism) or by
the age of three (regressive autism)
More boys than girls are affected by autism,
although diagnosed girls tend to have more severe
behaviors (American Psychiatric Association, 1994)
Sensory system for people with autism differs from
others; body language may also differ
DSM-5 Diagnostic Criteria:
Social Communication Disorder
* Difficulties in the social use of verbal and
nonverbal communication
communication for social purposes,
match communication with context,
follow conversation rules,
inferences/ nonliteral
* Results in functional limitations:
communication, social, academics, job
* Early onset
Diagnostic and Statistical Manual of Mental Disorders
Autism Spectrum Disorder
Diagnosis








Deficits in social communication and social
interaction across multiple contexts:
Social-emotional reciprocity
Nonverbal communication
Relationships
Restrictive repetitive patterns of behavior or
interests
Early onset
Clinically significant impairment
Autistic Spectrum Disorder: the Distribution

Mild (e.g., Asperger’s) ……. Moderate ……………Severe
A Word about the Brain







Abnormal grown between 6-12 months, then
slow growth
Differences in neural network pruning
Short-distance vs. long distance cortical
connections
Less cerebellum activity (automatic
movement) and more in planned movement
region
Autism and Senses









See: Fluorescent lights seem overly bright. Images
appear brighter or sometimes not bright enough.
Hear: Sounds can often mimic a hearing aid.
Background sounds may seem as loud as someone
speaking next to you.
Taste: Food textures can be overwhelming. Meat is very
unpopular with autistic children. Extremes of very soft
foods (e.g. pasta /yogurt) or hard crunchy (e.g., Kix/
pretzels/Cheetos) are favorites.
Smell: Think in extremes. Either they are oblivious to
smell, or the smell may overwhelm them.
Touch/feel: Tags inside shirts, scratchy fabrics can
distract an autistic to where their cries of suffering
appear to be non-compliant behavior.
Autistic Spectrum Disorder: Stimuli

Avoidance/Minimal ….......Normal …...…Maximum Stimuli-seeking
Sensory Tips






Sight: Sunglasses to alleviate brightness
Hear: Put student on edge of class.
Taste: Have parent provide a box of dry
cereal or favorite healthy food as back up
Smell: Smells can be overpowering
Touch: shirt tags or clothes’ buttons? Your
observations can improve student’s
concentration levels once accommodated by
parent.
Characteristics Of Autistic
Children











Difficulty relating to people, objects and events
Difficulty imagining the perspective of another person
Have repetitive movements such as rocking, spinning
and hand flapping
Avoid eye contact
Show little interest in social interaction
Have a rigid need for sameness in the environment
Speech development is usually impaired
developmentally
Tend to think literally (Talay & Wood, 2000; LeComer, 2006)
Educational Challenges






Social situations are very difficult because their social
skills do not evolve naturally.
Autism affects children’s thought, perception and
attention span.
Curriculum should include “skills that are typically
deficient in autism such as socialization, observational
learning, attention, and communication as well as
reduction of interfering behavior such as selfstimulation.” (Olley, 1998)
They need highly structured series of discrete
activities.
Challenges Dealing with the Library







Spatial complexity
Where is my seat? Where is my book?
What are the procedures?
DDC might be cool (and unique)
Don’t change things!


As a child entering the library with ASD (Autism Spectrum Disorder) I must
first get past the sensory assault. Are people loud, is it bright? Will I be
yelled at by the librarian if I line up the books? The more I frequent my
school library, the less the stimuli bother me.



I want to look at the video tapes to compare all the movie company logos;
Paramount, Disney and Tristar are my favorite logos to draw when I have
paper. I draw them repeatedly to soothe myself when my senses have had
too much input.



I am now looking for books about TV and movie actors. Where is Sponge
Bob, Curious George and Thomas the Tank Engine? I hope there are real
pictures because drawings do not hold my interest as much. If there are a
lot of small objects on the table I will clear them off with my arm knocking
them on the floor to help the Teacher be clean.



I want to check books out but need help waiting and standing still in line. I
have my books. I need paper to draw what I see in the books. Now that I am
back in my classroom I feel part of the class. However, the library is a great
place too.
Issues






High-energy, noisy
atmosphere
Unpredictably of
people and grouping
on site
Need to participate
and conform





Visit and learn rules
ahead of time
Use “talking stick”
Elementary Issues






May expect 1-1
attention
Have to share a
variety of materials
Difficulty with physical
activities










Get to know child
Provide routines
Determine best
seating
Create learning
stations
Monitor social
interactions
Middle School Issues





Difficulty transitioning
More collaborative
work expected
Cliques, rejection,
bullying









Transition signals
Stable advocate
Peer buddies
Differentiated library
space
Serve as library aides
High School Issues









High stakes
More selfmanagement
expected
Abstract thinking
expected
More risk-taking
options
Self-awareness and
hormones…







Life transition plan
Clubs
Self-expression online
Service as library
aides
Tips for Facilitating
Developmental Progress










Arrange library to facilitate exploration and
social interaction.
Provide an obvious, concrete theme or
purpose for action.
Choose a highly motivating activity.
Plan for repetitive action and ways to vary the
action.
Structure action to support taking turns.
Universal Design







Use accessible formats and methods, such
as ADA-compliant web pages.
Keep processes simple, clear, intuitive.
Provide choice and flexibility in seating,
resources, interaction, pacing.
Encourage positive communication and
learning environment.
Strategies For Inclusion








Get to know each child; sit near them.
Select materials and activities based on the
child’s interest.
Select resources based on representation,
readability, navigation.
Have a predictable routine for programs and
discipline.
Predict and prepare for behavior:
visual/auditory distraction, redirection, triggers.
To assist with transition, give warnings and
visual cues before activities change.
Promote positive participation, citizenship,
diversity, interdependence.
The Learning
Environment











Establish an environment that is as
predictable as possible.
Create physical & visual boundaries.
Control lighting.
Have quiet, less stimulating corners.
Provide furniture that focuses the child
(e.g., carrels, single machine).
Provide a variety of information formats.
Provide behavior-based communication
tools.
Getting Started












Collaborate!
Address full scope of deficits.
Remember developmental sequences of
physical, communication, social skills.
Keep child close to instructional area.
Use speech and gestures.
Be explicit and literal.
Avoid libraryese and library idioms.
Take advantage of teachable moments.
Reduce behavior incompatible with learning.
Behavior Tips










Inappropriate behavior may be regular or
situational.
Identify “triggers,” and avoid/mitigate them.
Work with child to find socially acceptable
ways to reach child’s goal.
Don’t expect reason during a melt-down.
Calm. Think safety first.
Provide break time and down time.
Be patient with yourself and others.
Applied Behavioral Analysis








Applied: principles that can be applied in all
kinds of settings that have social significance
to the person with ASD
Behavioral: observable, measurable actions
that are the focus of the intervention
Analysis: data collection, measurement, and
assessment used to determine an
intervention’s effectiveness.
Key: target behavior and reinforcement
Other Behavior Strategies












Arranging environment for optimum behavior
Contingent imitation: imitate youth’s behavior in order to
establish interaction
Modeling
Video modeling
Peer-mediated intervention
Social stories
Direct instruction
Teaching self-monitoring
Behavior momentum: increase motivation when a
challenging task is required.
Training Staff about Autism









Assess staff’s current knowledge and practice.
Increase staffs’ knowledge about ASD and typical
behaviors of children with regard to expected behaviors
Provide sample library lessons (e.g., Mitten Math and
Locating Library Books).
Brainstorm accommodations.
Provide bibliographies.
Have Autism experts provide PD in PRT Pivotal
Response Training (easy to learn and no cost to
implement).
Facilitating Peer Interaction
Circle of Friends Program
1. Explain autism to the class. It is a lifelong disability that
affects the way a person communicates and relates to
others.
2. Ask students to think of ways that they can help their
classmate (e.g., involving him more and helping him in
class).
3. Illustrate ways to be clearer with their language.
4. Discuss ways to nicely correct their classmate if he does
something inappropriate.
5. Allow students to give feedback about inclusion while
reminding them about the link between their peers’ behavior
and ASD.
6. Collect and analyze data about amount of interactions since
class became involved in including autistic classmate.
The heaviest
burdens of
disability arise
from personal
interaction and
not from the
impairment itself.”
Helen Keller

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Serving Children with Autism Spectrum Disorder (Part 1)

  • 1. Dr. Lesley Farmer, CSULB Library Services for Youth with ASD, Part 1: Getting to know and interact with youth who have ASD
  • 2. Learning Objectives        Identify characteristics of youth with ASD. Explain developmental issues of youth with ASD. Identify challenges that youth with ASD may experience when using the library. Describe ways to make the library environment comfortable for youth with ASD. Describe inclusion strategies. Discuss strategies for interacting successfully with youth having ASD. Describe effective social and behavior management strategies to use with youth having ASD.
  • 3. Is There an Issue?    1 in 90 children are born with autism Tenfold increase in the last 40 years Autism is now the second most common serious developmental disability after mental retardation/intellectual impairment (Centers for Disease Control and Prevention, 2006)  Little curricular attention is paid to meet needs of mainstreamed students (Iovannone, Dunlap, Huber & Kincaid, 2003)  Few school libraries document any services targeted to this population
  • 4. Autism Spectrum Disorder (ASD)      5 developmental disorders: Autistic Disorder, Rett’s Syndrome, Childhood Disintegrative Disorder, Asperger Syndrome, and Pervasive Development Disorder Symptoms can range from mild to extreme Children manifest symptoms of this group of disorders either at birth (early infantile autism) or by the age of three (regressive autism) More boys than girls are affected by autism, although diagnosed girls tend to have more severe behaviors (American Psychiatric Association, 1994) Sensory system for people with autism differs from others; body language may also differ
  • 5. DSM-5 Diagnostic Criteria: Social Communication Disorder * Difficulties in the social use of verbal and nonverbal communication communication for social purposes, match communication with context, follow conversation rules, inferences/ nonliteral * Results in functional limitations: communication, social, academics, job * Early onset Diagnostic and Statistical Manual of Mental Disorders
  • 6. Autism Spectrum Disorder Diagnosis     Deficits in social communication and social interaction across multiple contexts: Social-emotional reciprocity Nonverbal communication Relationships Restrictive repetitive patterns of behavior or interests Early onset Clinically significant impairment
  • 7. Autistic Spectrum Disorder: the Distribution Mild (e.g., Asperger’s) ……. Moderate ……………Severe
  • 8.
  • 9. A Word about the Brain     Abnormal grown between 6-12 months, then slow growth Differences in neural network pruning Short-distance vs. long distance cortical connections Less cerebellum activity (automatic movement) and more in planned movement region
  • 10. Autism and Senses      See: Fluorescent lights seem overly bright. Images appear brighter or sometimes not bright enough. Hear: Sounds can often mimic a hearing aid. Background sounds may seem as loud as someone speaking next to you. Taste: Food textures can be overwhelming. Meat is very unpopular with autistic children. Extremes of very soft foods (e.g. pasta /yogurt) or hard crunchy (e.g., Kix/ pretzels/Cheetos) are favorites. Smell: Think in extremes. Either they are oblivious to smell, or the smell may overwhelm them. Touch/feel: Tags inside shirts, scratchy fabrics can distract an autistic to where their cries of suffering appear to be non-compliant behavior.
  • 11. Autistic Spectrum Disorder: Stimuli Avoidance/Minimal ….......Normal …...…Maximum Stimuli-seeking
  • 12. Sensory Tips      Sight: Sunglasses to alleviate brightness Hear: Put student on edge of class. Taste: Have parent provide a box of dry cereal or favorite healthy food as back up Smell: Smells can be overpowering Touch: shirt tags or clothes’ buttons? Your observations can improve student’s concentration levels once accommodated by parent.
  • 13. Characteristics Of Autistic Children         Difficulty relating to people, objects and events Difficulty imagining the perspective of another person Have repetitive movements such as rocking, spinning and hand flapping Avoid eye contact Show little interest in social interaction Have a rigid need for sameness in the environment Speech development is usually impaired developmentally Tend to think literally (Talay & Wood, 2000; LeComer, 2006)
  • 14. Educational Challenges     Social situations are very difficult because their social skills do not evolve naturally. Autism affects children’s thought, perception and attention span. Curriculum should include “skills that are typically deficient in autism such as socialization, observational learning, attention, and communication as well as reduction of interfering behavior such as selfstimulation.” (Olley, 1998) They need highly structured series of discrete activities.
  • 15. Challenges Dealing with the Library      Spatial complexity Where is my seat? Where is my book? What are the procedures? DDC might be cool (and unique) Don’t change things!
  • 16.  As a child entering the library with ASD (Autism Spectrum Disorder) I must first get past the sensory assault. Are people loud, is it bright? Will I be yelled at by the librarian if I line up the books? The more I frequent my school library, the less the stimuli bother me.  I want to look at the video tapes to compare all the movie company logos; Paramount, Disney and Tristar are my favorite logos to draw when I have paper. I draw them repeatedly to soothe myself when my senses have had too much input.  I am now looking for books about TV and movie actors. Where is Sponge Bob, Curious George and Thomas the Tank Engine? I hope there are real pictures because drawings do not hold my interest as much. If there are a lot of small objects on the table I will clear them off with my arm knocking them on the floor to help the Teacher be clean.  I want to check books out but need help waiting and standing still in line. I have my books. I need paper to draw what I see in the books. Now that I am back in my classroom I feel part of the class. However, the library is a great place too.
  • 17. Issues    High-energy, noisy atmosphere Unpredictably of people and grouping on site Need to participate and conform   Visit and learn rules ahead of time Use “talking stick”
  • 18. Elementary Issues    May expect 1-1 attention Have to share a variety of materials Difficulty with physical activities      Get to know child Provide routines Determine best seating Create learning stations Monitor social interactions
  • 19. Middle School Issues    Difficulty transitioning More collaborative work expected Cliques, rejection, bullying      Transition signals Stable advocate Peer buddies Differentiated library space Serve as library aides
  • 20. High School Issues      High stakes More selfmanagement expected Abstract thinking expected More risk-taking options Self-awareness and hormones…     Life transition plan Clubs Self-expression online Service as library aides
  • 21. Tips for Facilitating Developmental Progress      Arrange library to facilitate exploration and social interaction. Provide an obvious, concrete theme or purpose for action. Choose a highly motivating activity. Plan for repetitive action and ways to vary the action. Structure action to support taking turns.
  • 22. Universal Design     Use accessible formats and methods, such as ADA-compliant web pages. Keep processes simple, clear, intuitive. Provide choice and flexibility in seating, resources, interaction, pacing. Encourage positive communication and learning environment.
  • 23. Strategies For Inclusion        Get to know each child; sit near them. Select materials and activities based on the child’s interest. Select resources based on representation, readability, navigation. Have a predictable routine for programs and discipline. Predict and prepare for behavior: visual/auditory distraction, redirection, triggers. To assist with transition, give warnings and visual cues before activities change. Promote positive participation, citizenship, diversity, interdependence.
  • 24. The Learning Environment        Establish an environment that is as predictable as possible. Create physical & visual boundaries. Control lighting. Have quiet, less stimulating corners. Provide furniture that focuses the child (e.g., carrels, single machine). Provide a variety of information formats. Provide behavior-based communication tools.
  • 25. Getting Started          Collaborate! Address full scope of deficits. Remember developmental sequences of physical, communication, social skills. Keep child close to instructional area. Use speech and gestures. Be explicit and literal. Avoid libraryese and library idioms. Take advantage of teachable moments. Reduce behavior incompatible with learning.
  • 26. Behavior Tips       Inappropriate behavior may be regular or situational. Identify “triggers,” and avoid/mitigate them. Work with child to find socially acceptable ways to reach child’s goal. Don’t expect reason during a melt-down. Calm. Think safety first. Provide break time and down time. Be patient with yourself and others.
  • 27. Applied Behavioral Analysis     Applied: principles that can be applied in all kinds of settings that have social significance to the person with ASD Behavioral: observable, measurable actions that are the focus of the intervention Analysis: data collection, measurement, and assessment used to determine an intervention’s effectiveness. Key: target behavior and reinforcement
  • 28. Other Behavior Strategies          Arranging environment for optimum behavior Contingent imitation: imitate youth’s behavior in order to establish interaction Modeling Video modeling Peer-mediated intervention Social stories Direct instruction Teaching self-monitoring Behavior momentum: increase motivation when a challenging task is required.
  • 29. Training Staff about Autism       Assess staff’s current knowledge and practice. Increase staffs’ knowledge about ASD and typical behaviors of children with regard to expected behaviors Provide sample library lessons (e.g., Mitten Math and Locating Library Books). Brainstorm accommodations. Provide bibliographies. Have Autism experts provide PD in PRT Pivotal Response Training (easy to learn and no cost to implement).
  • 30. Facilitating Peer Interaction Circle of Friends Program 1. Explain autism to the class. It is a lifelong disability that affects the way a person communicates and relates to others. 2. Ask students to think of ways that they can help their classmate (e.g., involving him more and helping him in class). 3. Illustrate ways to be clearer with their language. 4. Discuss ways to nicely correct their classmate if he does something inappropriate. 5. Allow students to give feedback about inclusion while reminding them about the link between their peers’ behavior and ASD. 6. Collect and analyze data about amount of interactions since class became involved in including autistic classmate.
  • 31. The heaviest burdens of disability arise from personal interaction and not from the impairment itself.” Helen Keller