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Anthony Linklater, Epilepsy Specialist Nurse at NHNN
Tobias Alpsten, CEO at iPLATO Healthcare
Introduction
               National Hospital for Neurology & Neurosurgery
               o Part of University College London Hospitals

               o   Based in central London the National Hospital is the
                   largest Neurological outpatients centre in the UK.

               o   Approximately 150 Dr’s, Consultants, Honorary
                   Consultants & Professors employed at the National
                   Hospital. There are around 50 Nurse Specialists in post
                   and 3 Nurse Consultants.

               o   Approximately 54,000 Neurological & Neurosurgical
                   patients seen each year. Only 5,000 patients are
                   admitted to the Hospital.

               iPLATO Healthcare
               o London based mHealth specialist supporting 4.5m
                  patients through 700 healthcare provider organisations.

               o   Services funded by 70 NHS commissioning
                   organisations, large hospitals, pharmaceutical
                   companies and charitable foundations.
What is epilepsy?

   Epilepsy is a neurological condition characterised
    by a tendency to seizures originating in the brain
   There are 40+ types of epilepsy
   Approximately 600k people in the UK have a
    diagnosis and take medication for epilepsy
   This equates to 1 in 103 people
What is epilepsy?
   During seizures, normal brain activity is interrupted by
    disorganised and excessive neuronal activity
   Seizures occur at unpredictable times & usually without
    warning
   They result in a stereotyped disturbance of emotion,
    awareness, behaviours, motor function, etc
   Seizures disrupt daily life & can cause serious harm or death
Treatment
  The primary treatment for epilepsy is medication
   which is usually effective at stopping the seizures
  Excellent adherence to medication is crucial
  But many people with epilepsy find it difficult to
   take medication regularly which increases the risk
   of having a seizure
  More seizures results in worse outcomes to
   patients and more costs for the health service
Support for People with Epilepsy
Patient experience including voice, SMS, mobile Internet and Web services

                                             Medication Reminder + Carer Alert

                                                                … reminder for you to
                                                                take your medication.
                                                                You have selected
                                                                carer alert so pl reply
                                                                ‘yes’ to this SMS when
                                                                you are done… More:
                                                                ww.pd.nhs.uk




    Self Monitoring in Patient Diary         Sharing and Review
                                                I can see on the seizure
                     Now that I have a
                                                history you e-mailed me
                  moment I will record the
                                              before the consultation that
                  seizure I had yesterday
                                                your seizures are going
                   and the medication I
                                                      down. Great!
                   changed last week…




                                                     Seizure History in pdf
Ecosystem underpinned by ICT
Outcomes: patient retention
 Studied 50 patients on the first version of the service

 Patient Retention At 12 months:
    46 patients opted to continue with the service
    4 patients were not receiving it
       1 died
       1 moved abroad
       2 found it unhelpful
Outcomes: medication adherence

 Mean Patient Ratings of Adherence (out of 10)
  Patients rated themselves as being more adherent
   after receiving the service for 12 months:


                              8.78
             9
             8
                   6.43
             7
             6
             5
             4
             3
             2
             1
             0

                 Before   12 months
Outcomes: seizures

 Seizure Frequency
  Almost half of the patients reported a reduction
   in their seizures:
                                        48%
         25

         20      30%
         15

         10
                             14%
                                                     8%
          5

          0

              No change    More       Fewer     No reports
                          seizures   seizures
Outcomes: unscheduled care
 A&E Attendance
  Around a quarter of patients reported reduced
   A&E attendance:
                                          58%
          30

          25

          20

          15       24%

          10
                             10%
           5

           0

               Reduced   Increased   Unchanged
Outcomes: patient feedback
 Patient Comments

 “I would forget them every day without the reminder”
 “I take it at exactly the right time; it's so helpful for me”
 “the one at 9.30 is fantastic because I always forget”
 “the text comes and I run to take them”
 “Does it help? Definitely, definitely, definitely!”
 “Please don’t tell me you are calling to cancel the service”
Conclusion

  Service associated with improved clinical outcomes.


  Service preserve health resources and is cost effective.


  Currently increasing number of patients in the UK.


  Looking for partners for international expansion.
Contact Us:

iPLATO Healthcare
Tobias Alpsten
E-mail: tobias.alpsten@iplato.net

National Hospital
Anthony Linklater
E-mail: Anthony.Linklater@uclh.nhs.uk




  Join the LinkedIn group ‘Mobile
  Health Network’ to learn more.

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iPlato Mobile Healthcare Industry Summit 2012 Tobias Alpset & Anthony Linklater

  • 1. Anthony Linklater, Epilepsy Specialist Nurse at NHNN Tobias Alpsten, CEO at iPLATO Healthcare
  • 2. Introduction National Hospital for Neurology & Neurosurgery o Part of University College London Hospitals o Based in central London the National Hospital is the largest Neurological outpatients centre in the UK. o Approximately 150 Dr’s, Consultants, Honorary Consultants & Professors employed at the National Hospital. There are around 50 Nurse Specialists in post and 3 Nurse Consultants. o Approximately 54,000 Neurological & Neurosurgical patients seen each year. Only 5,000 patients are admitted to the Hospital. iPLATO Healthcare o London based mHealth specialist supporting 4.5m patients through 700 healthcare provider organisations. o Services funded by 70 NHS commissioning organisations, large hospitals, pharmaceutical companies and charitable foundations.
  • 3. What is epilepsy?  Epilepsy is a neurological condition characterised by a tendency to seizures originating in the brain  There are 40+ types of epilepsy  Approximately 600k people in the UK have a diagnosis and take medication for epilepsy  This equates to 1 in 103 people
  • 4. What is epilepsy?  During seizures, normal brain activity is interrupted by disorganised and excessive neuronal activity  Seizures occur at unpredictable times & usually without warning  They result in a stereotyped disturbance of emotion, awareness, behaviours, motor function, etc  Seizures disrupt daily life & can cause serious harm or death
  • 5. Treatment  The primary treatment for epilepsy is medication which is usually effective at stopping the seizures  Excellent adherence to medication is crucial  But many people with epilepsy find it difficult to take medication regularly which increases the risk of having a seizure  More seizures results in worse outcomes to patients and more costs for the health service
  • 6. Support for People with Epilepsy Patient experience including voice, SMS, mobile Internet and Web services Medication Reminder + Carer Alert … reminder for you to take your medication. You have selected carer alert so pl reply ‘yes’ to this SMS when you are done… More: ww.pd.nhs.uk Self Monitoring in Patient Diary Sharing and Review I can see on the seizure Now that I have a history you e-mailed me moment I will record the before the consultation that seizure I had yesterday your seizures are going and the medication I down. Great! changed last week… Seizure History in pdf
  • 8. Outcomes: patient retention Studied 50 patients on the first version of the service Patient Retention At 12 months:  46 patients opted to continue with the service  4 patients were not receiving it  1 died  1 moved abroad  2 found it unhelpful
  • 9. Outcomes: medication adherence Mean Patient Ratings of Adherence (out of 10)  Patients rated themselves as being more adherent after receiving the service for 12 months: 8.78 9 8 6.43 7 6 5 4 3 2 1 0 Before 12 months
  • 10. Outcomes: seizures Seizure Frequency  Almost half of the patients reported a reduction in their seizures: 48% 25 20 30% 15 10 14% 8% 5 0 No change More Fewer No reports seizures seizures
  • 11. Outcomes: unscheduled care A&E Attendance  Around a quarter of patients reported reduced A&E attendance: 58% 30 25 20 15 24% 10 10% 5 0 Reduced Increased Unchanged
  • 12. Outcomes: patient feedback Patient Comments “I would forget them every day without the reminder” “I take it at exactly the right time; it's so helpful for me” “the one at 9.30 is fantastic because I always forget” “the text comes and I run to take them” “Does it help? Definitely, definitely, definitely!” “Please don’t tell me you are calling to cancel the service”
  • 13. Conclusion  Service associated with improved clinical outcomes.  Service preserve health resources and is cost effective.  Currently increasing number of patients in the UK.  Looking for partners for international expansion.
  • 14. Contact Us: iPLATO Healthcare Tobias Alpsten E-mail: tobias.alpsten@iplato.net National Hospital Anthony Linklater E-mail: Anthony.Linklater@uclh.nhs.uk Join the LinkedIn group ‘Mobile Health Network’ to learn more.